Radiation: When do side effects show?

Posted by sue417 @sue417, Apr 2 5:59pm

Hi
I just completed 10 days of double radiation to my breast for stage 2 ER PR positive her two negative breast cancer my question is I have had no side effects except fatigue from my radiation. My breast has not burned but my technician today told me that it may start next week has anyone else had this happen after your radiation is completed. I had some swelling and just tenderness but other than that no side effects yet to my skin also my other question is when they are radiating your right breast does it hit your left breast?

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Yes. I had no symptoms during radiation treatments and used lotions even after. 8 days after, I had charred skin and it lasted abput 2 weeks then peeled. Keep using your lotions. I used radiaplex and it really helped.

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@seabright2001

I had no side effects from the radiation to my breast whatsoever, not even fatigue. I was advised to use Eucerin after my treatments and I think that was helpful in preventing any skin issues.

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Think it depends on the length of the treatment and the kind of skin you have. I don't recall how many weeks I went for. (Don't want to.) But my skin started to peel about half way through. (One side only). Creams were offered but didn't do much. I am very fair skinned. My son was horrified when he saw the pictures! I was very tempted to halt the treatment- but with Covid around I just wanted to get out of there!

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@einnoc

I had 33 radiation treatments. Things went well until exactly halfway through, We had even gone out to have dinner to celebrate how well it was going. And then, the next day, not so much. They actually sent me home a couple of times because of the burns. I started May 5 and ended on July 18 (2022). I don't know if I had fatigue from that or from the fact that I was also taking Anastrozole at the time (even though, normally, I have read, oncologists don't prescribe the pills until the radiation is over.) Of course, normally, oncologists order an oncotype (mine didn't and wouldn't even discuss it) and putting me on Anastrozole on Feb. 1, 2022, following my 1/27/2022 surgery less than a week prior, at a time when I was fighting a seroma and taking 500 mg. of Cephalexan every 4 hours for weeks was also questionable. And then there was the matter of ordering a bone scan BEFORE you put the patient on Anastrozole. I didn't get my bone scan until late May, either, and, as a result, I now officially have osteoporosis, whereas, going in, it was osteopaenia. My opening score was -1.4T and now it is pushing the -2.5T osteoporosis border. Radiation was much much easier than Anastrozole was. Tamoxifen was easier to tolerate than Anastrozole, but not by much. I'm pinning my hopes on the 33 radiation sessions (right side) I had.

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No one suggested that I get a bone scan after chemo and radio, and before taking anastrozole. I did anyway and so could measure the deterioration caused by extreme fatigue and reluctance to exercise as a consequence of chemo followed by radio. Now beginning to reverse bone density loss via a version of the Onero high impact exercise program developed here in Brisbane. See the discussion on the Osteoporosis support group. It works!

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I would like to think I could do the Onero high impact treatment for bone density, but my left knee blew out on September 15, 2022 and put me in a wheelchair for 6 months. Since then, I have to brace my fragile left knee to even make a short walk or go to the grocery store, so I'm not sure that I'm ever going to be doing "high impact" anything with my damaged left knee, that was in the MOST clinical trial for damaged joints (bicycle fall) and arthritic people for over 20 years (1997-2020). There are so many things I now can barely do at all, like climb stairs. The symptom were those of a meniscus tear and I had to have 32 ml of an anti-inflammatory, 6 ml of Durolane and Tramadol for pain after X-rays revealed no break. I agree that being old (I'm 78) is a factor, but I definitely think that I was an extremely poor candidate for A.I. adjuvant therapy with Anastrozole (or Laetrozole or Exemestane). 7 months on that really semi-crippled me for life. My Illinois oncologist, of course, denies that the A.I. pills had anything to do with it saying, "You're just old." I disagree. Two Texas oncologists, who know that I had routine MRIs on my left knee and X-rays of my hips and arthritic knees for over 20 years, have said I should never have been put on A.I. pills at all, and most certainly not before ordering a bone scan for me prior to treatment. I also am in the midst of $10,000 of dental work (implants, etc.) as two of my teeth have just split below the gum line as the result of routine cleaning. My oral surgeon made me fill out a book-length series of questionnaires about whether or not I had taken any biophosphonates. It seems that that might have made the dental implant off limits, as Anastrozole can weaken the jawbone, too. If it's not one thing, it's another. (Roseanne Rosanna Danna from SNL).

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@einnoc

I would like to think I could do the Onero high impact treatment for bone density, but my left knee blew out on September 15, 2022 and put me in a wheelchair for 6 months. Since then, I have to brace my fragile left knee to even make a short walk or go to the grocery store, so I'm not sure that I'm ever going to be doing "high impact" anything with my damaged left knee, that was in the MOST clinical trial for damaged joints (bicycle fall) and arthritic people for over 20 years (1997-2020). There are so many things I now can barely do at all, like climb stairs. The symptom were those of a meniscus tear and I had to have 32 ml of an anti-inflammatory, 6 ml of Durolane and Tramadol for pain after X-rays revealed no break. I agree that being old (I'm 78) is a factor, but I definitely think that I was an extremely poor candidate for A.I. adjuvant therapy with Anastrozole (or Laetrozole or Exemestane). 7 months on that really semi-crippled me for life. My Illinois oncologist, of course, denies that the A.I. pills had anything to do with it saying, "You're just old." I disagree. Two Texas oncologists, who know that I had routine MRIs on my left knee and X-rays of my hips and arthritic knees for over 20 years, have said I should never have been put on A.I. pills at all, and most certainly not before ordering a bone scan for me prior to treatment. I also am in the midst of $10,000 of dental work (implants, etc.) as two of my teeth have just split below the gum line as the result of routine cleaning. My oral surgeon made me fill out a book-length series of questionnaires about whether or not I had taken any biophosphonates. It seems that that might have made the dental implant off limits, as Anastrozole can weaken the jawbone, too. If it's not one thing, it's another. (Roseanne Rosanna Danna from SNL).

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Hi
Wow reading your story I can't believe they neglect by physicians. I myself have osteopenia and have a fracture in my spine t7 which I have been on bisphosphonates going on 3 years which my bone density has come up greatly in my spine I just finished radiation for breast cancer luckily I only had to do 15 rounds and my oncologist is just putting me on 5 mg of tamoxifen for 3 years no way in God's earth when I touch and AI. I feel for you. Also I had a bone density last year and my oncologist wanted to see that and I have another one this April next week. I live in Canada

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My radiologist’s nurse told me to apply Aquaphor to my radiated left breast every day after treatment. I continued to use a moisturizing lotion for a year or so after. My skin was a little red, like a mild sunburn and I was a little more tired at the end of the day but that could have been the result of getting up so early every morning to go to radiation and then a full day at my office.
I am convinced that the Aquaphor made a difference. And no, the radiation was targeted only at my left breast.

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@sue417

Hi
Wow reading your story I can't believe they neglect by physicians. I myself have osteopenia and have a fracture in my spine t7 which I have been on bisphosphonates going on 3 years which my bone density has come up greatly in my spine I just finished radiation for breast cancer luckily I only had to do 15 rounds and my oncologist is just putting me on 5 mg of tamoxifen for 3 years no way in God's earth when I touch and AI. I feel for you. Also I had a bone density last year and my oncologist wanted to see that and I have another one this April next week. I live in Canada

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I had osteopaenia at the outset of b.c. Treatment. My bone density declined from -1.4T to -2.2T during my treatment for breast cancer. I have to wait until May for a new bone scan, or Medicare won’t cover it. I am also a Type 2 diabetic.

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@einnoc

I had osteopaenia at the outset of b.c. Treatment. My bone density declined from -1.4T to -2.2T during my treatment for breast cancer. I have to wait until May for a new bone scan, or Medicare won’t cover it. I am also a Type 2 diabetic.

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Hi
Is the decline from an AI ? Or other treatment.

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@freckle1

Think it depends on the length of the treatment and the kind of skin you have. I don't recall how many weeks I went for. (Don't want to.) But my skin started to peel about half way through. (One side only). Creams were offered but didn't do much. I am very fair skinned. My son was horrified when he saw the pictures! I was very tempted to halt the treatment- but with Covid around I just wanted to get out of there!

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I have fair skin but it’s not dry. That was probably helpful. My radiation was for 4 weeks, Mon-Friday. The last week was targeted at the area of the surgery. I received all my care at the Mayo Clinic, Rochester.

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I had radiation on the right breast only for 33 days. I was advised to moisturize 4 times daily which I did without fail. I used Udderly Smooth because of price but also because it was a light, fluffy mixture that went on easily with no friction and was not greasy. I had zero problems (I have fair skin). I did have one self-inflicted incident. It was summer (you ladies know breast sweat), I used a washcloth a little too aggressively underneath and damaged the skin. It healed with a few days of TLC, but we just need to remember the skin is particularly vulnerable during treatment and remember to be gentle. After treatment there was just the tiniest hint that the right side was a bit darker than the left, but you had to really look for it. I think the doctor recommended moisturizing for 1 month post treatment. Or maybe he recommended 1 year while I decided 1 month was sufficient. And it was.

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