radiation vs no radiation research/personal experience, outcomes

I also chose radiation for lobular. I've been lucky and trust my team. They've always offered to set up second referrals for me, etc. Because lobular is diffuse (can take different routes...at least I think that what it means), I wanted to do everything I could to avoid recurrence. ALthough at first they suggested one week, he later suggested three because it was lobular. During radiation, I used the 3 creams recommended on this loop. Rotated them and always slapped on the aloe vera gel in the dressing room on my way out. My breast is in great shape. I have never heard of radiation causing lymphedema so that is new to me. But I have known women who got it after having nodes removed. I'm on anastrozole and so far, have not had problems with it. Yesterday I went to see a specialist about a separate issue. Female, probably in her 40s. When I told her I had lobular cancer last year, she said she had it too and she chose a double mastectomy. Didn't want the yearly MRIs, etc. We are all different. I'm in my late 70s. Didn't want drains etc. And I'm searching for a ten minute breast MRI. They exist. Your choice will be what fits you and your life. Best wishes!

I think we all need to remember that we can always go back to our surgeon, or phone in, with any questions regarding our treatment plan - and at any time. My DMX was on July 9th and there were a couple times I needed to call the office for advice or more info on the treatment. My surgeon likes to see people for 2 years out...but I am pretty confident that she, or her staff, would answer a question beyond that; perhaps they would require me to come back in but I would do that to ensure my best possible outcome. I am currently struggling a bit with lymphedma from the DMX...and I had no lymphnodes removed (dyed but was not required in surg path), clear margin, and full path came back negative so no radiation or chemo required. My lymphedema is definetely from the surgery. Currently doing manual massage, cupping of fibrous areas, wearing compression - and just started using kinesiology tape to help drain my chest into my pooh belly...plus reduce the pooh belly. I think it is working. Next L-dex is November 20th. Good luck with your decision on radiation or no radiation.

@luckbme - Doctors cover themselves and each other. You are right, we have to listen carefully and observe...as well as know our risks. Getting second opinions was the best thing I did for myself in this situation.

@crspedsrn - yes. Grade 3 is considered aggressive. I am sorry. That is what I had too.