Radiation Proctitis with bleeding and urgency

Posted by chippydoo @chippydoo, Sep 23 10:21am

Has anyone had post Radiation Proctitis with bleeding and bowel urgency and how did you deal with it? Was it resolved? What type of medical provider helped you. Mine started 6 months after radiation was completed and I am miserable and looking for a solution. Thanks!

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Profile picture for ededed @ededed

I have radiation proctitis

Mine started 9 months after the end of radiation.
I am still seeing a gastroenterologist.

Now I mainly bleed when I eat certain foods. People report different food triggers.
My main one is myristic acid. Foods high in myristic acid include Palm oil, beer, wine, and nutmeg. (BTW I can still drink hard liquor without the bleeding effect. )

Urinary urgency is aggravated by coffee and other caffeine drinks.

Fecal urgency for me is related to how much dairy I consume. The more dairy, the more likely I will have an episode.

I also had 6 weeks of hyperbaric oxygen therapy which helped me heal and I have been much better since.

I also take 2 probiotics and one prebiotic. If interested I can list these.

I also had a procedure where the sores in my colon were cauterized during a colonoscopy.

I am better now but there is always the concern of how far am I from a bathroom if I need one in a hurry.

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@ededed 7 months post radiation and urgency episodes are starting to slow. I take a half of an Imodium if I know I won't have easy access and it works. For 2 months post radiation it was a nightmare.

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