Radiation or not after surgery for endometrial cancer?

Have they offered you proton radiation? Where are you being treated?

I have been diagnosed with cancer tumors returning after having 8 rounds of chemo and HIPEc surgery. It has been 15 months since last chemo. My cancer was peritoneal carsanomatosis so I am fortunate for this time. I was wondering if anyone else has been diagnosed with this and what has been their treatment. Has anyone had proton radiation. Thank you

I was just diagnosed with this and right now I am more worried about what happens after surgery than the surgery. My prayers are with you through this

@jomamapb May I ask about your exams post-hysterectomy? Do these include pelvic exams with a speculum with a light into the vagina so he can get a good luck at your vagina and vaginal cuff? I ask this because I have learned here from other members that some doctors do not do this. My nurse practitioner at Mayo Clinic does a pelvic exam including a vaginal exam with speculum. That is how she found a recurrence I experienced two years after my hysterectomy. I had no symptoms at the time so I'm thankful that she is so thorough.

I hope that you will have no recurrence and that your exams continue to give you the all clear. When is your next exam?

Hi. Very much hoping you won’t have a reoccurrence. What kind of regular follow up are you having? Best to be aware of anything that might be off and have it checked out. Take care and best of luck.

I had endometrial cancer diagnosed after having a biopsy last May 23. I saw a gynecological oncology surgeon that did a complete robotic hysterectomy with sentinel node biopsies that came back negative. I have had two exams since by him and he is pretty confident it won't come back. He did not recommend any other intervention. I am in Colorado. Everything was done at Rose Medical in Denver.

@tg24 Did your doctor say FIGO Stage 1? That means that the cells from the biopsy are not organized yet. Adenocarcinoma is the most common and the least aggressive of endometrial cancers. The cancer will be staged after the hysterectomy and pathology examines the specimen. The stage will help your oncologist to determine what if any treatment is recommended after the surgery.

Here is more information on endometrial cancer that explains FIGO Stage and Staging:

What is Endometrial Cancer? (American Cancer Society):

-- https://www.cancer.org/cancer/types/endometrial-cancer/about/what-is-endometrial-cancer.html

The above website will also help you to formulate questions to ask your doctor. Please write your questions down as this will help you to remember what to ask. If you need help with questions will you come back and ask us?

I think I probably did not say when I had my uterus cancer. It was 2009, I had a recurrence in 2016.
At the time of my original cancer, I just had some bleeding. I went to the gynecologist and she did a biopsy in her office, sent it to be analyzed, and it came back. Stage one grade 2.
People tell me that after the surgery they had brachytherapy no one said I should have that after my surgery it was taken for granted that it would not occur again since there was only a one percent chance. If you have Brachytherapy one has to use a dilator so in the future, they will be able to examine you. If you are sexually active, then you can alternate them, because my husband had prostrate cancer I had to use the dilator once a day. for the first two years and then gradually I was able to cut down the days and I only use it twice a week now. Stage one is good, I don’t remember having any cramping etc. maybe some of your issues could easily be coming from stress it works in strange ways I wonder whether that is my problem also as I am really stressed right now but doubt that caused my bleeding in my rectum.
Sometimes when I don’t know what to ask I put the question in my search bar for whatever ails me and ask what questions should I ask. I was definitely sore after the surgery and it was hard to get in and out of bed. Make sure when you have your check ups that your dr always uses a speculum I had issues after 4 years when I moved to a different state I saw 4 doctors until I found someone who would use one and guess what I had recurrence.

@jeanadair123 Another quesiton: I am having other symptoms—low grade fever for weeks, exhaustion, cramping like menstrual cramps and trouble sleeping, though the latter is probably just a whirling mind. Did you have any other symptoms besides bleeding?
Thanks.

Thanks for your response! I haven’t had the hysterectomy yet. Got the news Friday morning but haven’t spoken with oncology. I want this to happen asap but want to know what questions to ask. I understand from my ob/gyn that it will most likely be laparoscopic hysterectomy and they will check lymph nodes at that time. She said stage 1 adenocarcinoma which i believe is the slow growing type.?