Radiation instead of removal (surgery delayed due to illness)

Posted by robo45vt @robo45vt, Mar 4 1:12pm

I had to cancel my RP prostate surgery do to a cold. The doctors would not put me under with a cold. I have rescheduled for September. I was low risk and told it was ok to postpone. Just wonder more about photon radiation treatment. Do you get incontenance from radiation? If you are Gleason 3+3 can you get 20 low dose treatments instead of 5 higher dose treatments? Radiation doctor told me the cure rate was the same as removal. Are the after effects less with the higher treatments? Do you have to take hormones when getting radiation treatment? Now that I have time going to schedule another meeting with radiation doctor. What are some of the after effects of radiation and for how long? Where I live they don’t offer proton, just photon. What is the difference?
Thanks
Robo

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

Robo45vt, glad to see you are doing your homework on treatment options to make sure they align with your life expectations going forward. I am not sure how old you are, but age is a big factor. When I was diagnosed with PC in September 2022, I had a Gleason Score of 7 (4/3). I also did a lot of research and ultimately decided on a robotically assisted radical prostatectomy. For myself, I wanted a procedure that gave me the best possible chance for 30+ years of prostate cancer free life. There are a lot of statistic-based statements about long term survival rates and biochemical reoccurrence between the different treatment options. I am somewhat skeptical of these studies because the outcome is so reliant on variables outside of the studies control, or the analysis is skewed because of the base population that was included. Given my age and life expectations, I wanted a procedure that did not rely on imperfect imaging tools to guide the treatment, allowed for complete margin definition, and removed all known cancer from my body. Because my #1, #2, #3, ... goal was life, I was not as concerned with ED and incontinence. In the end, I have complete continence and erectile function, but these were not huge concerns for me - To be 100% honest, complete continence was a high want, but not an absolute need for me. Erectile function was obviously a want, but not something I was willing to prioritize over a prostate cancer free life.
From my experience and research - Your quality of life, for the rest of your life, will depend on the competence of your surgeon (RO, etc. if go with other treatment options) and support staff. You must do your homework and pick the best possible center of excellence available to you. Then, do the research to pick the best possible doctor at that center of excellence. I did not want the best manager (department head), writer, or instructor. For me, I wanted a surgeon that had performed thousands of robotic assisted radical prostatectomies, with excellent outcomes. I ended up going with Mayo-Rochester as my center of excellence. The hospital staff was amazing and my outcome is directly related to the quality of care I was given. If at all possible, please do not let distance be part of your decision-making process. Your life and the quality of your life will depend on the competence of the hospital and its staff. FYI - If financial means is an issue, there are options to work with Mayo-Rochester to get low-cost housing. This housing option was only available for certain conditions, and prostate cancer is one of them.

As always, the above comments are based on my experience. Everyone is different and you must choose the treatment plan that best aligns with your goals and life expectations.

Good luck to all,

Jim

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Had 5treatment SBRT and 1 eligard injection.Last treatment 1/5/24.Minimal adverse effects.Mostly frequent nightly urination.Still having hot flashes from eligard injection 7/3/23.I would ask urologist and oncologist if the hormone shot is mandatory.Also would have medical oncologist advice.Have you had triage meeting with all three?

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In 2017 I had radiation In 2020 it metastases to my spine Now on Xofigio radiation injection

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@hammer101

Robo45vt, glad to see you are doing your homework on treatment options to make sure they align with your life expectations going forward. I am not sure how old you are, but age is a big factor. When I was diagnosed with PC in September 2022, I had a Gleason Score of 7 (4/3). I also did a lot of research and ultimately decided on a robotically assisted radical prostatectomy. For myself, I wanted a procedure that gave me the best possible chance for 30+ years of prostate cancer free life. There are a lot of statistic-based statements about long term survival rates and biochemical reoccurrence between the different treatment options. I am somewhat skeptical of these studies because the outcome is so reliant on variables outside of the studies control, or the analysis is skewed because of the base population that was included. Given my age and life expectations, I wanted a procedure that did not rely on imperfect imaging tools to guide the treatment, allowed for complete margin definition, and removed all known cancer from my body. Because my #1, #2, #3, ... goal was life, I was not as concerned with ED and incontinence. In the end, I have complete continence and erectile function, but these were not huge concerns for me - To be 100% honest, complete continence was a high want, but not an absolute need for me. Erectile function was obviously a want, but not something I was willing to prioritize over a prostate cancer free life.
From my experience and research - Your quality of life, for the rest of your life, will depend on the competence of your surgeon (RO, etc. if go with other treatment options) and support staff. You must do your homework and pick the best possible center of excellence available to you. Then, do the research to pick the best possible doctor at that center of excellence. I did not want the best manager (department head), writer, or instructor. For me, I wanted a surgeon that had performed thousands of robotic assisted radical prostatectomies, with excellent outcomes. I ended up going with Mayo-Rochester as my center of excellence. The hospital staff was amazing and my outcome is directly related to the quality of care I was given. If at all possible, please do not let distance be part of your decision-making process. Your life and the quality of your life will depend on the competence of the hospital and its staff. FYI - If financial means is an issue, there are options to work with Mayo-Rochester to get low-cost housing. This housing option was only available for certain conditions, and prostate cancer is one of them.

As always, the above comments are based on my experience. Everyone is different and you must choose the treatment plan that best aligns with your goals and life expectations.

Good luck to all,

Jim

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Jim- Thank you for sharing these details!! Lots of great info and advice. Have a peaceful day.

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@mikewo

I did the five-proton treatment at Mayo Phoenix. It was a Monday-Wednesday-Friday-Monday-Wednesday. My three- and nine-month PSA were undetectable, and I am 74. You don't state your age which would be a factor in which treatment you would choose. I was a 4-3 Gleason in two cores and 3-4 in two cores all from the area of a seven mm lesion. I had a 30 core transperineally fusion guide biopsy due to my 120-gram prostate and my PSA was 2.9. I chose radiation because of my age, and it has the same results as removal. If I get 15 more years it makes me 89 and I don't want to go into a nursing home.

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I appreciate this input. I meet with my radiation oncologist this Wednesday. I’m choosing radiation because of my age 74. Also a Gleason score of 9. Love Mayo PHX

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@glenallen

I’m in the midst of biopsies and MRIs.
75 yo, Gleason 3+4, Decipher high risk.
Getting a 12 sample biopsy Mar 7 at SW in San Antonio.
Given my age, he recommends radiation only, not surgery due to very high risk of prolonged incontinence due to age. And 24 sessions, not fewer high dosage sessions.
Our relative small city has a reputable radiation oncology group, but I can also have it at Mayo, AZ. I have a place to stay there in AZ. What to do…stay home and have it locally, or go to Mayo? I’m guessing Mayo would be most of your recommendation.
Thx for any comment.

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74 and did the 5 proton treatments at Mayo Phoenix. You should have booked sooner as Spring Training will be over by the time you would get here. There is extended spring training and then the Arizona Complex League if you do more than the five treatments to keep you busy at night.

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@mikewo

74 and did the 5 proton treatments at Mayo Phoenix. You should have booked sooner as Spring Training will be over by the time you would get here. There is extended spring training and then the Arizona Complex League if you do more than the five treatments to keep you busy at night.

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Thankfully we have family in the area so accommodations are taken care of. But I appreciate your reaching out.

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Before I chose RP, two surgeons told me that if I chose radiation and it was not successful, removal is quite difficult. I am happy with my choice. No after effects and so far no recurrence, although my decipher score indicates I am high risk. Best of luck!

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@dwheels8

I appreciate this input. I meet with my radiation oncologist this Wednesday. I’m choosing radiation because of my age 74. Also a Gleason score of 9. Love Mayo PHX

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@dwheels8 my husband was just diagnosed with prostate cancer. Gleason score of 7 (3+4). Was surgery an option for you?

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@marynoelle

@dwheels8 my husband was just diagnosed with prostate cancer. Gleason score of 7 (3+4). Was surgery an option for you?

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Yes still is. Just not keen on catheter or wearing a diaper. Depends on age also and Gleason score.

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