Radiation Cystitis: How long does it take for the burning to go away?

Posted by brb5306 @brb5306, Dec 4 2:00pm

I completed 28 radiation treatments 5 months ago. I’ve suffered from radiation cystitis since completion. It has improved very slowly over time. My question is how long has it taken for burning to go away if you had cystitis? I’m beginning to think this is something I will have to live with. I’m currently doing hyperbaric oxygen therapy and it has helped some but I still experience burning. Also if you have experienced cystitis have you noticed if your diet affects your symptoms?

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@brb5306, you may also be interested in these related discussions:
- HBOT therapy for radiation cystitis https://connect.mayoclinic.org/discussion/hbot-therapy-for-radiation-cystitis/
- Radical Prostate Surgery/Salvage Radiation with Cystitis https://connect.mayoclinic.org/discussion/radical-prostate-surgerysalvage-radiation-with-cystitis/

Has the burning gotten better?

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Profile picture for brianjarvis @brianjarvis

Completing the full HBOT regimen should eventually help.

I’ve heard that, if having pain and burning during urination (dysuria) caused by radiation treatments, once they’ve ruled out a UTI and prostatitis, try these in this order:
> Avoid fruit juice, smoothies, etc. with citric acid.
> Try NSAIDs (Ibuprofen/Alleve/Advil/Naproxin/Motrin).
> Try Prescription NSAIDS (Celebrex)
> Try Medrol dose-packs (steroids)
> Finally, try the over-the-counter product called Azo (it’s basically a urinary analgesic);

As always, check first with your doctor about these potential remedies.

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@brianjarvis I am just completing hbot (will have done 50 sessions; wanted 60 but insurance won't pay for the remaining). Unfortunately, I don't feel any improvements yet but I understand that healing continues after your sessions are completed.

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