RA/ Morphea/PMR and light chain disease- med changes
Seems that methotrexate either causing me to feel really sick or is not working since I weaned off prednisone a month ago. Or is this what people refer to as a flare? I’ve been diagnosed with these autoimmune diseases this year. Lab work is not showing any liver damage or an increase in sed rate or CRP. Doc wants me to reduce methotrexate a few milligrams. If not successful then try Leflunomide. I read about this drug on Mayo site and it is scarier than methotrexate. Takes two years to leave your body!
Right now having profound fatigue, skin itchy, photosensitive eyes and skin, aching joints and muscles increased some, nausea and poor appetite. Covid test is negative . Still getting up every day, getting cleaned up and dresses, cooking and house cleaning. Take a nap or two daily when energy is depleted. Use THC/CBD gummies at night and sleep a good 7-8 hours at night. It is so hard to know if the diseases are causing symptoms or the medications are! Anyone on here have experience with Leflunomide?
Thank you 🙏
Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.
@gila, here are a few related discussions that might help:
- Leflunomide, Kevzara for PMR, who knows about them?: https://connect.mayoclinic.org/discussion/leflunomide-kevzara-for-pmr-who-knows-about-them/
- Has anyone tried the medication leflunomide?: https://connect.mayoclinic.org/discussion/medication-1/
- Undiagnosed auto immune disease, put on Leflunomide: https://connect.mayoclinic.org/discussion/undiagnosed-auto-immune-disease/