RA and RA-ILD medications

Posted by ead @ead, 1 day ago

Has anyone found that when Ofev was added to treatment of the fibrosis the RA flared?
I have been on actemra for about 2 years and it has been working well. Recently the pulmonologist put me on Ofev for the ILD. About a month after starting it I had an RA flare. In spite of prednisone giving some relief I never got back to where I was before. As weeks went by i started to see visible changes in my fingers and more pain. My knees began to influence how I walked ( a shuffle, or on better days a limp). The rheumatologist has changed me to Rituxan, 2 infusions 2 weeks apart, then nothing for 6 months.
I have had 1 infusion so far. Data says I won’t notice a difference for 4-8 weeks. So far that’s true. I asked the rheumatologist and was told he had not seen that effect of Ofev with patients who went on it but it could be possible. Said if that was the case he was glad we didn’t wait to change from the Actemra.
Anyone had a similar experience?

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@ead, I thought you might want to check out these discussions while you wait for others with experience to respond.
-- Anyone have experience with OFEV meditation for ILD?
https://connect.mayoclinic.org/discussion/anyone-have-experience-with-ofev-meditation-for-ild/
-- Prescribed Ofev, anyone have experience with this drug?
https://connect.mayoclinic.org/discussion/prescribed-ofev-anyone-have-experience-with-this-drug/

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