Hi from Oregon
I was diagnosed two weeks before my 33rd birthday in March of 2016.
I had left breast mastectomy with axillary lymphnode dissection without reconstruction in April. I started chemotherapy AC every other week for 4 treatments. Then weekly Taxol for 12 treatments through my port.
Month off. port out.
Started radiation for 5 weeks.
Took Tamoxifen for 18 months and chose quality of life on September 6 2018.
Then August 13 2019 diagnosed with right portal vein thrombosis in my liver. Sickest I have EVER been.
Medical Oncologist is also hematologist! No answers at all, still more tests being ran.
Anyone experience this ?
I’m 36 and on blood thinners.
@sparklegram
Hi Sparklegram – no, I'm not suggesting you try tamoxifen, just maybe look at the aromatase inhibitor you haven't tried. It's a difficult decision. Read as much as you can before deciding what to do. For me, I cannot take tamoxifen due to family history.
Liked by sparklegram
I cannot take any of the AI’s due to severe side effects, while I had no side effects of tamoxifen. You May wish to ask you oncologist about faslodex. It is a shot once a month and the only side effects I have experienced is fatigue for two days and an occasional mild hot flash. For insomnia try CBd, and if you can get medical marijuana try to get the CBd with thc. It helps with sleep and anxiety.
@elizm
@cindylb
I can so relate. Anastrozole has made me lose weight, despite doing nothing differently… about a pound or so a month. My oncologist is frustrated not understanding the cause of the weight loss. I have noted that I have another friend who had the same reaction to it, but he dismisses the anecdote. I don't mind the weight loss for the time being, but in another year, it may be just too much… and then what?