PV Itching Not After Bathing

I have neuropathy from head to toe and no one can determine the cause. Also have light chain kappa protein in my blood that has been increasing every 3 months It is 25 now which my hemotologist says is low, but will continue to watch. Now, I have itching in my back every night when I get in the bed to watch TV. It is so bad. Tried benadryl but does not help. Sometimes it is so bad. I have scratches on my back where I scratched so hard with my plastic LONG SHOE HORN, nothing else seem to help the itch.

Yes, my itching usually starts in the am not everyday but often. Normally it’s my legs. I use children’s chewable Benadryl. I tried Walmart brand but that really makes me tired. It’s a trial and error for everyone. Sometimes I run around the house rubbing my legs until the Benadryl takes effect. I am lucky so far, as itching and a bit of fatigue at times are my only side effects.

ME!! It’s the itching that drives me insane! I’ve tried, Sarna, it seems to help! I also have s friend who is trained in Chinese medicine who makes a purple sauve (olive oil, candula, tea tree oil, etc! That also really moisturizes! I try to take lukewarm baths with sea salt, no more than every other day! Use lotions to keep skin moisturized! Refuse oral medication as I’m not a fan of big pharma! I have lost over 50 lbs with no know cause and still losing after 2.5 years. Also pain across mid back that really is persistent and only take Tylenol. Biopsies thru dermatology says no to skin lupus, gave colbetesol ointment that seemed to resolve the awful rash. Im supposed to see a hematologist every three months but first available not till November 2023? Western medicine has failed after 2.5 years to help and dismissed me as irrational! Any help or support welcome! My greatest fear is stroke and losing my independence and I need right hip replacement surgery before end of year for avascular necrosis ongoing 5 years, so painful it keeps me from sleeping over 4 hours! Please help! Best of luck!

Yes I too have had itching inside my ears and they were shedding. My fingers were white when I withdrew them. DermOtic Oil Ear Drops have helped.

I get very itchy inside my ears.Does any body have the same.

Hi everyone
Yes @saucy mine was itchy skin before I was diagnosed with PV. More than 4 years I have such itchiness until bleed. I was struggling and 4 years before I was diagnosed as a diabetic patient and one and a half year before I was informed that I have PV. So PV started with sugar disease, which is one of the factors. My iron level goes low and they inject iron in me so HCT again increases. I feel always hungry and metabolism works excellent. I am not gaining even if I eat a lot.

Good Morning. I itch intermittently all day. Scalp, hands, legs and feet. I was trying different antihistamines daily. This helps, god forbid I would forget a day. At Christmas time I also started with hives. Legs, arms, hands and feet. When I was stressed, fatigued and hot mostly. I went to the allergist and he did tests and came up with the fact that I had a mild Covid infection which he believes triggered hives as an immune response. He said that infection can cause hives. He has put me on Blexten daily for a month. I have just started it, will keep you posted.

I itch on my left arm all the time it drives me crazy NO creams etc work

Lori,  I greatly appreciate all your replies and your dedication.    
Eileen

Hi @eileen11108, Just a quick note while you wait for @victoria01 to answer…When using Tea tree oil it shouldn’t be applied directly to skin as is. It’s important to dilute the oil with a carrier oil, such as olive oil, coconut oil, or almond oil.

The method I learned is that for every 1 to 2 drops of tea tree oil, add 12 drops of a carrier oil. Test it first on a small area of skin just to make sure you don’t have a reaction.
My two cents worth. 😉