PV Itching Not After Bathing

I usually itch right after my bath, I use dove soap and will use various oils from vaseline to cerave however nothing except wait for it to calm down. I just now at 1 pm put on some compression socks and oh my goodness, they may be coming off. Yikes.

hollie

Well the sweating subsided when I lost 70 lbs not trying after all RBS COUNT CLIMBED! now I’m cold, pain in mid back, awful itching, rashes, multiple biopsies with no definitive diagnosis! No plebotomy because 2 point shy of their requirements! I’m done with western med! Did get PET no malignancies detected! Cleaned up diet, using natural methods for skin, oatmeal and natural soap, baking soda, sea salt, Epsom salt, turmeric ointment and only every other day with no HOT water. Sunlight seems to help heal but heat is unbearable currently! Also Sarna lotion will help with itching when other methods fail! I’m still just vaping anc cleaned up diet, seeing naturopathic doc, who gave me 4 supplements and glad to report first time in 3 years maintaining weight! I see him again this next week. This doc is old school naturopathic cellular level not the experimental expensive new “clinic” fad! I’ve gotten better results from him for under $200 out of pocket in 2 months than the $10,000 K billed to Medicare in 3 years! Best of luck to you all! Still no repeat JAK test, bone marrow, despite AVN IN RIGHT HIP, or phlebotomy orders, scheduled to donate blood later this month on my own! Heal thyself! Western medicine has failed, big pharma can keep their poision!

Cindy, I believe @splashgirl1961 @raremiracle2 have mentioned sweating in relation to PV.

Congrats on quitting smoking!

Have you found anything to help with sweating?

What about the sweating? Anyone with PV go through that sweating? Sometimes I have to change my clothes it gets so bad. I see my hands just start watering up. I have quit smoking cigarettes and it has been 6 months since I had my last one. Please 🙏 help

Hello, I have PV as well. Sometimes it feels like a spider crawling on my skin at all hours if the day that causes me to itch. As for the itchiness when I take a shower, I would call it more like electricity following an itch. When I do the dishes in hot water , I feel that electricity as well as sweat pouring out of my body everywhere. I have tried them taking blood out of me and found no relief. Taking baby aspirin 80mg every day helps.

Initially, I took antihistamines. Then I tried Xanax which seemed to work better. But, my itching phase passed and I pray it stays passed.

Hi I have suffered with itching now for a number of years caused by my CLL.
I have found the easiest and best way to deal with it was by taking an antihistamine called Cetrine. I use to take these daily but now I manage with just one tablet every four days or so. Night time is generally the worst but as soon as I feel the itch starting to come back I immediately take a Cetrine to keep it under control.

Could it be related to anything you might be eating which could be interacting with your meds and thus result in the itching?
Eg one of the side effects of Jakafi is UTIs. I do not have that per se but when I need to urinate I get the sensation as if I’m starting one - so we did blood test to find out about food intolerances which then showed me to be gluten and lactose intolerant!!! 😣 (I knew about the latter, the former came as in unpleasant shock).

I had terrible thorax itching. Xanax stops it fast!!! And my itching was more than likely a precursor to my Myelofibrosis. .5 my Xanax (Alprazolam) does the job.

in reply to @jerrlin It doesn't matter what time of the day, I itch. It has especially been difficult because of the heat. Nothing works for me, and I hate the cortisone spray. I try to tell myself that I am only going to scratch this area for a few minutes and then stop. Whatever works.