Pituitary adenoma rediagnosed: They're not sure now
I have been having horrible breast pain and cysts for about 3 years. Dr's did a total hysterectomy, said that would stop my pain. It worked for about 6 months. The pain is back and I still have breast discharge. My headaches are horrible. After getting an MRI, I was dx with a putiary tumor. Then I had a 6 months follow up mri. Now they say they have no idea what it is. Then I started getting terrible joint pain in my hands. Now it's also in my feet and both knees. My prolactin levels were high, but have been up and down. Seeing a group of Mayo Dr's next month. I'm hoping to get some answers. Has anyone else had any of these problems? I'm desperate. I hurt everyday. I will add I am a 44 year old female with 2 children. Thank you in advance.
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My daughter diagnosed January with pituitary adenoma (macroprolactinoma) prolactin level at 500. Cabergaline (sp?) dopamine agonist meds reduced levels from 500 to 21 in 3 months and tumor has begun shrinking from 19 x 11 mm it was in January.
Hello @hmcmillian and welcome to Mayo Connect. As I read your post, I certainly felt the frustration you must feel at getting so many contradictory messages from your doctors and having continuing painful symptoms.
I'm really glad to know that you have an appointment at Mayo Clinic to get to the bottom of this problem. Mayo specializes in hard-to-diagnose problems and they have research that allows them great treatment modalities.
If you are comfortable sharing more, what type of specialist will you be seeing at Mayo?