Has anyone had the PSMA-PET scan? Was cancer found?

Posted by hector13 @hector13, May 12, 2022

My prostate was removed 5 years ago. Two months ago, my PSA went from 0.00 to 0.09, and this month the PSA increased to 0.2. My urologist believes I am a candidate for the new PSMA-PET scan approved in 2020 that is more sensitive than previous scans in detecting small tumors. Has anyone had this scan? If so, what was your PSA at the time and was the cancer found?

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

I had a PSMA Pet scan on 12/2/22 and it showed my cancer was confined to the lesion in my prostate which gave me peace of mind that it had not spread and that I had time to investigate all options before making a decision as to treatment. I had a 30-core biopsy of my 100-gram prostate with 5 cores all in the same spot positive for PC. 3 cores were 3-4 and two were 4- 3. currently looking for a 2nd opinion from a different pathologist as to Gleason numbers. PSA is 2.9 and lesion is 7mm according to MRI.

REPLY
@melcanada

I am on Zolodex injections and now Xtandi or Enzalutamide I have tiredness only I feel positive even though med oncologist said Enza may only last 18 months I have my BP pill then Oatmeal then sake easy to swallow Enzalutamide 4 pills $33.75 CDN each OHIP paid along with a D3 dissolvable

I have green tea with breakfast and throughout the day Soothing I am anxious in the evening though Any thoughts. A tad depressed thinking what's after 18 months? PSA up to 9.8 from 1.2 last oct so looking forward to it dropping fast Metastasis is in L2 lumbar hip and T11

Jump to this post

Meet with Oncologist on Monday for evaluation. So far after starting Xtandia on 6 January and the the Eligard injection on 9 Jan feel good but a littke on the tired side. No other side effects. Could be as I am a care giver 24/7 for my other half. My psa went from 20.8 in November to 0.4 in January. 3rd PSMA PET scan matched first two. Am trying to get some exercise and keep active.

REPLY
@dsingstock

Met with Urologist and he was very happy with results of 6 month Eligard injection (1st) and 160 mgs daily of Xtandia. Psa yesterday, 25 Jan, 0.4, down from 20.8 on 9 Novv22. Will meet with Oncologist next Monday 30 Jan. Doing minor weight bearing exercises and very active all day. Watching diet closely and remaining off sugars. Also, 1 cup of coffee and Boost in morning, enter during dayvand 1 cup of green tea on the evening. Jusy happy psa down 20 points in 2 months.

Jump to this post

I am on Zolodex injections and now Xtandi or Enzalutamide I have tiredness only I feel positive even though med oncologist said Enza may only last 18 months I have my BP pill then Oatmeal then sake easy to swallow Enzalutamide 4 pills $33.75 CDN each OHIP paid along with a D3 dissolvable

I have green tea with breakfast and throughout the day Soothing I am anxious in the evening though Any thoughts. A tad depressed thinking what's after 18 months? PSA up to 9.8 from 1.2 last oct so looking forward to it dropping fast Metastasis is in L2 lumbar hip and T11

REPLY
@dsingstock

Am frustrated lost writeup 3 times just before posting so made a hard copy ad a file. Sorry if inconvenient.

Jump to this post

Met with Urologist and he was very happy with results of 6 month Eligard injection (1st) and 160 mgs daily of Xtandia. Psa yesterday, 25 Jan, 0.4, down from 20.8 on 9 Novv22. Will meet with Oncologist next Monday 30 Jan. Doing minor weight bearing exercises and very active all day. Watching diet closely and remaining off sugars. Also, 1 cup of coffee and Boost in morning, enter during dayvand 1 cup of green tea on the evening. Jusy happy psa down 20 points in 2 months.

REPLY

I go with the more aggressive treatment. The side effects were manageable, and the sooner they hit the area with radiation, the less likely I believe for micro metastasis. I'm surprised they didn't hit the one lymph node... just my thoughts. Best wishes for your recovery!

REPLY

Am frustrated lost writeup 3 times just before posting so made a hard copy ad a file. Sorry if inconvenient.

REPLY

I had similar circumstance. Several years after RP and psa's <.1 it suddenly went to .2, Oncology Radiologist sent for the new scan, I went to .3 by the time of scan. They found a level 3 spot which means it's inconclusive, but they seemed to focus on it for sure, I wish I had had it a couple weeks sooner, but my primary care acted like a .2 was nothing critical. He didn't know. The sooner they treat, the less potential spread, imo. I even suggested wait until mine rose higher, but he explained, yes we may see it, but it may not be as curable. I just had my 6 month test after ceasing Orgovyx and Blessed to find out its still undetectable at my first 6 month test. I did a test immediately after radiation and 6 month of Orgovyx and it was undetectable with ultra sensitive PSA test. That Orgovyx is some effective stuff, might of got psa very low by itself. IDK.

REPLY

It is a struggle. I am 75. I am sure that the cancer will come back as it usually does. When and if it does come back, considering my age, I will carefully weigh the effect that treatment has on my life and the probable benefits of treatment. My sister suffered terribly with chemo and I have learned from witnessing that.

REPLY
@hbp

I just completed ADT and Erleada for 6 months then RP then 6 more months of ADT and Erleada at UCLA Westwood. My PSA went from 9 to .01, my testosterone went to -6. I had a Gleason score of 9 and we are hoping for a cure. The process was not bad, the worst side effect was very tired, poor sleeping , some depression and a small rash in the 11 th month. If the cancer comes back Dr Donin and Dr Reiter at UCLA said that they would probably put me back on ADT for some period of time and I am ok with that , but I hope that the cancer does not return. Good luck to all of us!

Jump to this post

Thank you for responding. Hope you do very well and are able to avoid additional tx.

My cancer is stage 3a; with Gleasons 8 & 9 and EPE; last preop PSA 7.5 (postop .19).

Began Orgovyx Jan 6; radiation scheduled for Jan 13 canceled because mapping not satisfactory to Rad Onc (hip replacements interfering; repeat PSMA PET scan in 3 wks; had to STOP Orgovyx after 7 doses to try to have accurate scan [no science to guide here]).

So I am in "treatment limbo", and less than comfortable with delay.

Best to you, and all that are inflicted.

REPLY
@hbp

I just completed ADT and Erleada for 6 months then RP then 6 more months of ADT and Erleada at UCLA Westwood. My PSA went from 9 to .01, my testosterone went to -6. I had a Gleason score of 9 and we are hoping for a cure. The process was not bad, the worst side effect was very tired, poor sleeping , some depression and a small rash in the 11 th month. If the cancer comes back Dr Donin and Dr Reiter at UCLA said that they would probably put me back on ADT for some period of time and I am ok with that , but I hope that the cancer does not return. Good luck to all of us!

Jump to this post

Apalutimide or Erleada are same I believe They want to put me on Enzalutamide for ever I'm 78 as I am apparently resistive Any advice
L1 lumbar and right hip show light up PSA 5.6 up from 1.2 in Nov

Prostate radiated 40 x in 2018 and L2 radiate July 2021. 1 inch taken out

I feel great

REPLY
Please sign in or register to post a reply.