My daughter has Crohn’s disease and PSC. The Crohn’s was in remission for about 20 years, but flared in the fall of 2018. Things have not been good since then. Also around this time her ALP started to rise and after many tests she was diagnosed with PSC. In August 2019, she had surgery to remove about 8 inches of her intestine. It has been a struggle since then. The surgery and recovery from that were easy compared to what she has been dealing with. She is on several medications. Most of her hair has fallen out…she itches all the time…she now has gout from her knees down…she is very tired…and she just got results from her last blood work that her ALP had risen by about 30 points to 285. I think one of the faciliatators had suggested that she get her iIg4 tested. She mentioned that to her doctor who told her that an iIg test was done, (but it was not iIg4). The doctor seems concerned that her bile ducts are currently being affected…she is not sure if they are internal or external…she is going for an MRI this coming week. Also, her husband has been laid off from work and her health insurance ends March 1. She has a part time job at a B & B and her boss told her if they gave her stents in her bile ducts that she would not be able to work anymore…I assume there…my daughter was so upset, she did not ask why. She has a very stressful life (husband a recovering alcoholic/drug addict). I know the stress could be affecting the Crohn’s, but could it be affecting the PSC?
Liked by Mamacita, Alumna Mentor