Interested in hearing people's experiences with PRRT
Sorry if this has been discussed before, but I was interested in hearing peoples experience with PRRT (Peptide Receptor Radionuclide Therapy)? I live in Georgia and have an appointment at Mayo in Jacksonville next month and I was wondering if this was something they would discuss…
Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.
@klpetts , Hi I read your posting of April 2020 that you were heading off to have the PRRT. Wonder if you mind sharing your experience of having PRRT?
My son was diagnosed with pNET of pancreas 4 to 5 cm affecting the duodenum and tumors were also found on nearby lymph nodes. The tumor was diagnosed as Grade 1 to 2. As we were not aware of any other alternative treatments, he has signed up for PRRT. Reading the posting from this Support group, it seems like other alternative, say Lanreotide injections… Can offer shrinkage of the tumor without all the possible Radiation potential danger to the blood cells. Hope PRRT is not an overkill in my son's case.
@klpetts. I read your other postings inr the past few days using 'search'. Sorry to know PRRT did not work for you. Hope your new chemos work for you. Good luck.
A quick update for my wife is doing ok, 90 day checkup after surgery showed no new growth in liver. Our team is suggesting PRRT treatment while the NET is at its lowest amount to try to knock it down even more August 30, so I’m also wondering what info anyone can share on PRRT?