Anyone had Proton Beam Therapy for Meningioma?

to Mamaseta.........did you have your surgery at Mayo and if so which one?

Thank you for your reply. This helps me.

I had surgery on 9/13/23 to remove a very large grade 1 left side meningioma. I was very anxious too but everything went very smoothly and they got it all. I had my three month follow-up MRI and everything is healing well. I’ll pray for you and giving you virtual hugs!

I went to Radiology last week and she recommended that we do another MRI asap. I did the MRI Monday, and it has not changed. She said we could monitor it and that there was no Urgency. I asked if Radiology could contact Neurosurgery so they could all be singing out of the same Hymnal. A message was sent on Monday and no reply.
I have called twice. I am very anxious about this because surgery is on 2-14-24. Can you give me any thoughts? Thank you.

How are you doing, @jimmye?

I understand the anxiousness - but try to relax - knowing that your medical team do this every day and will take care of you. This is what they do and they are good at it!

Please keep us updated. I heard it is more precise than gamma knife.
I am sure you will be fine.

Thank you. I am scheduled for surgery on 2/14/24.
I am going to radiation for a follow up discussion Monday.
I have a level 1 meningioma. I am very anxious at this time.

Has anyone had experience with carbon ion therapy for tumors? No centers in the US as yet, but one being built at Mayo in Jacksonville, FL to open next year, according to news reports. Japan, Germany, Austria, Italy, France and a few other global locations offer this treatment. It is ostensibly cutting edge therapy for tumors.

I had it. It worked good shrunk and zapped what was left of the tumor from my surgery.