Anyone had Proton Beam Therapy for Meningioma?

Hi,
I am learning more about my treatment options. I am also 54 and had meningioma tumor removed in 2023 and now being told I should do radiation treatment, combination of proton and photon radiation therapy. The remaining tumor is around my pituitary gland and optic nerve. I am curious about long term side effects and treatment. It seems that with tradtional radiation therapy there is more of a chance of long term side effects.
Thank you for sharing.

I had stereotactic radiation 21 years ago for my meningioma. It took time for the tumor to disappear, but over time it did. It still shows on the MRIs for about 5 years, but it was shrinking the entire time. Now it is gone, but I have developed a second one which I am dealing with. This new one was just discovered a few weeks ago, so I haven’t seen a neurosurgeon yet. But non-surgical options can be a better choice. My original doctor didn’t think I’d make it through surgery, so the radiation was my only alternative.

Welcome @robineliza. Here is more information about meningiomas and proton beam therapy from Mayo Clinic.
- Meningioma https://www.mayoclinic.org/diseases-conditions/meningioma/symptoms-causes/syc-20355643
- Proton Beam Therapy Program https://www.mayoclinic.org/departments-centers/proton-beam-therapy-program/home/orc-20185488

Treatment for a meningioma depends on many factors, including:
- The size of the meningioma and where it is.
- The rate of growth of the tumor.
- Your age and overall health.
- Your goals for treatment.

Have you discussed treatment options with your care team?

Hi I was just told that I have this tumor. What type of therapy is that?

Welcome, @woody1234. Where will you be getting treatment? Do you have any questions as you prepare to upcoming treatment?

I just wanted to check in. Tomorrow will be 2 weeks since the completion of my 28 Proton Beam treatment's. My energy level is better. I still have my double vision, they told me this may not improve (30%) chance. I have other side effects but hopefully in time they will improve. But hopefully the meningiomas will not grow any larger & cause further problems. Everyone at Mayo is wonderful & I feel like I got the best possible treatment. I hope & pray for all of you, that everyone does very well and we can all get on with a healthy life.

I start treatment next month for four weeks hope all goes well. Woody davis

I did the proton in Rochester Minnesota to zap what was left after my brain surgery then did 9 months pill form chemotherapy after that it's going to be 5 yearsnow and I'm doing great no reoccurrences

Thank-you!!

Yes, at Mayo Clinic in Rochester.