Protocol for maintenance therapy with BCG

Posted by lannak @lannak, 3 days ago

I’m very curious what the protocols are for maintenance therapy with BCG after one has been in the 6 month treatment phase and had a clean cystoscopy. Thank you all in advance

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fmfran | @fmfran | 2 days ago

I’m following this. I’m a little behind your timeline.
Fran

lhatzenbuhler64 | @lhatzenbuhler64 | 2 days ago

I finished my first 6 treatments in May and had a clean scope completed the end of June. I assumed I would be seen for another scope in 6 months or a year. Unfortunately, that isn’t what is happening. I started treatment again today as preventative and will continue treatment for at least a year. I will have 3 treatments and then 6 weeks off and another scope. The pain today when urinating is the same as it was prior to any treatment.

lannak | @lannak | 2 days ago

In reply to @lhatzenbuhler64 "I finished my first 6 treatments in May and had a clean scope completed the end..." + (show)

Congratulations for having a clean scope! I'm still waiting for my clinic to set me up August treatment days. I'm hoping that my pain and bleeding goes back to pre treatment levels. The last 3 treatments in May were severe UTI like symptoms. Also I don't know if the severity of symptoms are dose dependent. I started out getting either 1/2mg or 1 full mg/treatment. The clinic has decided that everyone now will get 1/3 of a mg to deal with "the shortage"