Prostatectomy or Not

Posted by hlieberman1 @hlieberman1, Nov 8 3:06pm

I was diagnosed with moderately aggressive PC January 2014. After exploring my options I decided to have a prostatectomy because i just wanted the cancer out of my body. The post surgery biopsy showed more cancer than the pre-op biopsy and I was glad I had the surgery. After lots of both mental and physical work my ability to have a mostly normal erection and not be incontinent has worked out ok. Today I look back and am damn glad I was aggressive. My Mayo doc privately told me that someone with a similar profile decided against surgery and the cancer had spread to his bones and he was dying a painful death. I know surgery is not for everyone and that there are more and perhaps better options today than in 2014 but if surgery seems indicated, don’t be afraid.

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

Profile picture for sriddle1 @sriddle1

@thmssllvn interesting. I will bring this up to my partner’s doc asap. He had RP on 10/17 and other than getting a Viagra scrip, he only briefly mentioned injections for a future date.

Is it already too late?

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@sriddle1

He can use a pump with same results - less expensive and less painful. My husband got Cialis prescription for daily use to increase blood flow in the area and stimulate recovery. He was also told to buy a pump and is using it for rehabilitation. And no, it is not late at all. You can find a LOT of posts addressing this issue on this forum - just type any term that interests you in upper left field for "search". Also, keep in mind that it is usually needed up to 24 mos for nerves to completely recover , so patience is the "name of the game" at this point. Some men have faster recovery.

This video is very helpful :

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This is exactly what my husband just did. Cancer was at the margins, nothing showed that until it was out.
Three years of watch and wait, biopsies, constant psa blood draws.
This decision to get rid of the culprit saved his life and sanity.
It was the best option for him and recovery for him has been nothing terrible like they described.
Being cancer free is the best feeling!

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Profile picture for jmhabo @jmhabo

@rickwoodvisuals Thanks Rick and everyone for their support and encouragement. My surgery was a nerve-sparing laparoscopic/robotic surgery and it is my understanding that the Cleveland Clinic surgeon who performed my operation is very experienced, so I am hoping for the best. Apparently it is a slow process.
My doctor recommended 10 Kegel's per hour during every waking hour. 10 waking hours is 100 Kegel's. Seems excessive. A book recommended by the Cleveland Clinic "Guide to Surviving Prostate Cancer" by Dr. Patrick Walsh seems to be a very good reference and recommends standing while urinating and stopping stream for 5-10 seconds, repeating as often as possible. I'm curious what kind of exercises other RP patients are doing.

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@ jmhabo

in my experience that seems like overkill. Ive had 2 Pelvic Floor therapists and neither had me doing more than 3 sets of 10 Kegels for 5-10 seconds each day and 3 sets of 10 for the 1 second Kegel.

I recommend finding a GOOD pelvic floor PTs and working with them to establish a program. While there is a lot of info online, i found each therapist had valuable insights. They are hard to find, and often booked weeks if not months in advance. I had to wait over 3 months to see a highly regarded one.

One thing inparticular - its very hard -at least for me - to isolate the pelvic floor muscles. it seems insignficant, but you get the hand of it with a little practice. a good PT will be able to help you. its hard not to engage your core and gluts when clenching the pelvic floor muscles.

PS stopping urine flow was a good practice for me, taught me what muscles to use.

its 5 months for me, and I am largely continent at this point. Still a few dribbles, but just one light pad a day, more for peace of mind than actual use.

Good luck!

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I 100% agree, surgery provided me with peace of mind going forward. I was unwilling to gamble the rest of my life on imperfect imaging devices. I wanted the prostate and seminal vesicles removed so that a physical biopsy could be performed to define margins. If you do your upfront homework and pick a center of excellence for the surgery, the radical prostatectomy is not a bad surgery. For me, I chose Mayo-Rochester and Dr. Igor Frank - What an amazing hospital and doctor/staff. I did all of the pre surgery work and followed the post surgery recommendations for Kegels, etc... There were no side effects with continence or erectile function. I do realize that everyone is unique, so outcomes do very (age, weight, health, ...), but by doing your homework and choosing the best possible surgical center/doctor, you can minimize potential negative consequences.

I believe there is not one treatment that fits all - Everyone is unique and has unique expectations and goals, thus he should to pick a treatment plan that fits his life goals.

Good luck and I pray that all of you have good outcomes from whatever treatment is chosen.

Jim

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Profile picture for hammer101 @hammer101

I 100% agree, surgery provided me with peace of mind going forward. I was unwilling to gamble the rest of my life on imperfect imaging devices. I wanted the prostate and seminal vesicles removed so that a physical biopsy could be performed to define margins. If you do your upfront homework and pick a center of excellence for the surgery, the radical prostatectomy is not a bad surgery. For me, I chose Mayo-Rochester and Dr. Igor Frank - What an amazing hospital and doctor/staff. I did all of the pre surgery work and followed the post surgery recommendations for Kegels, etc... There were no side effects with continence or erectile function. I do realize that everyone is unique, so outcomes do very (age, weight, health, ...), but by doing your homework and choosing the best possible surgical center/doctor, you can minimize potential negative consequences.

I believe there is not one treatment that fits all - Everyone is unique and has unique expectations and goals, thus he should to pick a treatment plan that fits his life goals.

Good luck and I pray that all of you have good outcomes from whatever treatment is chosen.

Jim

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@hammer101

For me it was Dr Gettman at Mayo. Best hospital in the world!

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