Prostate Cancer Incontinence

@peterj116 I remember in the beginning you were thinking not a good idea. How long did it take to get comfortable with it.

I had a prostatectomy in 2010 and 3 1/2 years later I had salvage radiation. Five years after that incontinence became a problem. I only needed a thin pad each day, but it progressively got worse over past 6 the years. I use a thick pad, but I went over to a neighbor’s house to help them with some sound system electrical issues and in 1.75 hours, not only did I soak the pad I got my pants wet and without realizing it I sat down on one of their chairs which had a cushion. If I had realized that I would’ve never done it, and I don’t think they ever noticed, but it sure freaked me out that it happened so quickly. When I got home, I tried to pee, and there was nothing left.

I already felt I couldn’t go anywhere for more than a couple of hours without having to worry about having to change pads if I’m standing or sitting. Sleeping at night I don’t have any incontinence at all. It sure has put a crimp on my ability to travel.

Last week I spoke to a urologist Who specializes in incontinence?. I told her I wanted to get an AUS and she made an appointment with me to do the first steps to verify whether or not it would be possible. That involves a cystoscopy.

The AUS isn’t 100% but at most you only need a thin pad for a whole day. That will enable me to travel and go places where I have to stand or sit for a long period of time.

I have no idea what I am talking about, still it might be an un-noticed signal he is missing. We are used to the usual pressure/discomfort signal of the past and are not aware there may be a new one that takes its place as a result of the surgery . It may require paying close attention to the body rather than focusing on/expecting the same old thing that had meaning in the past. Just a thought…

@tuckerp You're right. I wasn't thrilled with it. Took about 4 days to work out what it could do & what it couldn't do.
I was under the impression that it was designed to be water-tight.
It's not. There's still a *little* bit of urge incontinence, so when I'm really busting to go, it can leak just a little bit.

It was just getting used to it.
In fact, I often forget I have it.
I'd be standing at the urinal thinking "Come on... pee"
And then it's "Oh yeah.... I gotta turn the tap on". (pump pump)

@jeffmarc
Jeff ~~~ I'm pretty much in the same boat as you. Except I got you by a few years. I had a prostatectomy in 1995 at age 48 and Salvage radiation in 1996.
PSA stayed low until a few years ago and started doubling.
Went on Lupron for 18 months. PSA became undetecable. Went on a lupin holiday for appointments 18 months.
PSA started climb again. Jan of this year it was 32. One month on Nubeqa and Orgovyx PSA went down to 4.7.
Currently it's 0.07
Started having continence issues when I started on lupron.
Gee, I wonder why. One of the side effects of ADT is lack of muscle mass. Well, a urinary sphincter is a muscle.
Pelvic floor rehab did squat.
Now I'm scheduled or a AUS on the 31st of this month.
Fingers crossed but hopeful.
Good luck to all.