Progressive Muscular Atrophy

Generally, just looking to see if anyone else here has been diagnosed with Progressive Muscular Atrophy PMA? I've gone from a healthy, active woman three years ago to being wheelchair-bound, unable to move my legs or arms. Experienced an early diagnosis of ALS by one neurologist that my current neurologist disagreed with, started treating me for MMN, and ultimately now has me diagnosed with PMA. Currently on a weekly GAMAPLEX Infusion treatment that seems to be greatly slowing the progression but no other treatments. Have considered going to the Mayo Clinic for a second opinion. Current (3 years now) Neurologist is from UC Gardner Neurology, but I have also seen Neurologists from Ohio University Neurology Center as well as St. Elizabeth Neurological Center. Like most people with this type of diagnosis, I'm just looking for answers.