Problem with Chronic constipation

Posted by bb03 @bb03, Feb 1, 2021

I have a history of hypothyroidism, severe endometriosis/treatment was a hysterectomy 17 years ago.I also have a hx of IBS. My thyroid hormone levels are stable. I eat like a rabbit(I poop like one too, LOL!!!!!!). I eat a large amount of fiber and drink almost every hour(nonalcholic).ONly prescription drugs I take are armour thyroid and my estrogen/prosterone troche. I make a coconut bread and I add psyllium husks,flax seed and chia seed to it. I eat it practically every am. I also eat a spinach salad for lunch daily with nuts and yogurt and eat a lean meat and veggie and more coconut bread at night. I do one cheat meal with a cheat dessert once per week. I am relatively active for my age of 60. I've been to a gastroenterologist and we have tried Linzess which didn't help at all. I take miralax, and a Super Cleanse tab one per day which has herbs to soften the stool and to stimulate the bowel and It barely works. I am at a loss. I have not tried Montegrity yet. I don't know if it will be helpful and the side effects scare me. I had a CT of my abdomen and it was ok, no obstructions. The gastroenterologist that I go to practically accused me of abusing laxatives. I would be impacted if I didnt use the miralax and the Super Cleanse. Diet/water and activity do not help. I had diarrhea from my late teens to the age of 36 when my intestines out of the blue just shut down completely. I was diagnosed with hypothyroidism, I was put on Synthroid but the constipation didn't go away. So if there is any gastroenterologist out there that can help me, please let me know.I feel defeated and worry about my health.

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@rocknrobbn

I use IB Gard everyday during a flare of bacterial growth in my intestines and then as needed for left lower quadrant pain.
After 5 years of chronic constipation and then diarrhea for 7 months due to bacteria, and treatment with antibiotics this is the first week of bowel movements 3 days in a row!!!
I take 1 Colace every night. As well as Align, IB Gard and Colace.

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MAy I ask what bacteria did you have ? I’ve had c.diff and SIBO years ago . I have chronic left lower pain especially after a . The pain gets excruciating and lasts for days
I feel like it’s a bacteria .
Is IB guard a probiotic ?
Have you been out on antibiotics?

REPLY

I'm 20, very young to be having problems this bad. When I was younger I had severe depression and anxiety, still do, but I've only ever had the occasional constipation with a quick fix solution then I was fine for years.

Around my birthday I had a severe, and sudden, bout of constipation. It went on for weeks, and when I say constipation I mean ZERO bowel movement, not even a sliver. So, I went to the hospital. I got stigmatized, they told me it was just constipation and I'd be fine, handed me a few packets of laxatives and sent me off.

The laxatives worked, at first, but deep down I knew it wouldn't solve the issue, so I used them sparingly as I saw my family doctor. 6 months later and the issue is still persevering, in fact, it got worse. Now my digestive system is struggling to digest food, I am constantly hungry despite the fact that my digestive system is too slow to eat food normally anymore, if I eat it won't come back out.

I had a small few weeks of no severe issues, and suddenly it got twice as bad recently, as I write this my stomach is screaming at me to eat, as if it's starving. Mind you, I never felt this way before when I woke up until all of this began happening. I considered if food could be a trigger, but none of it makes sense, because I've constantly switched my foods and never had stomach pain, gas or bloating unless I haven't had a bowel movement for days on end.

I have no idea what's wrong with me, other than sharp gut pain, usually around the lower abdomen/belly button, and the fact that I usually I can't have a bowel movement at all unless I bomb my gut with laxatives. I'm at a loss, I'm terrified, and I've been to the ER 3 times and the Urgent Clinic once along with my family doctor 3 times. When I call helplines (yes, I'm that desperate) they tell me to go to the ER, but the ER never takes me seriously.

I've had a CT x-ray, an ultrasound, and I'm stuck waiting until December 22nd for a specialist. I'm at a loss, I don't know if I can wait that long anymore before I start digging out my own stomach. What do I do?

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Hi @cl0wncl0wn, I moved your discussion and combined it with an existing discussion titled:
- Problem with Chronic constipation
https://connect.mayoclinic.org/discussion/problem-with-chronic-constipation/

I did this so you could meet other members talking about their experiences with chronic constipation and other GI issues. Members like @bb03, @notmoff, @dsoots, and @heisforme2 all discussed either bouts of constipation or chronic constipation.

@cl0wncl0wn, you have sought out medical advice many times and have not found answers. That must be frustrating. What specialist are you seeing in December?

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A gastroenterologist is what I'm waiting for since nobody else was able to find anything. I've done everything to try and reverse the constipation, exercise, diet, fiber, upping my water intake, lowering my water intake. Nothing has worked.

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@cl0wncl0wn

I'm 20, very young to be having problems this bad. When I was younger I had severe depression and anxiety, still do, but I've only ever had the occasional constipation with a quick fix solution then I was fine for years.

Around my birthday I had a severe, and sudden, bout of constipation. It went on for weeks, and when I say constipation I mean ZERO bowel movement, not even a sliver. So, I went to the hospital. I got stigmatized, they told me it was just constipation and I'd be fine, handed me a few packets of laxatives and sent me off.

The laxatives worked, at first, but deep down I knew it wouldn't solve the issue, so I used them sparingly as I saw my family doctor. 6 months later and the issue is still persevering, in fact, it got worse. Now my digestive system is struggling to digest food, I am constantly hungry despite the fact that my digestive system is too slow to eat food normally anymore, if I eat it won't come back out.

I had a small few weeks of no severe issues, and suddenly it got twice as bad recently, as I write this my stomach is screaming at me to eat, as if it's starving. Mind you, I never felt this way before when I woke up until all of this began happening. I considered if food could be a trigger, but none of it makes sense, because I've constantly switched my foods and never had stomach pain, gas or bloating unless I haven't had a bowel movement for days on end.

I have no idea what's wrong with me, other than sharp gut pain, usually around the lower abdomen/belly button, and the fact that I usually I can't have a bowel movement at all unless I bomb my gut with laxatives. I'm at a loss, I'm terrified, and I've been to the ER 3 times and the Urgent Clinic once along with my family doctor 3 times. When I call helplines (yes, I'm that desperate) they tell me to go to the ER, but the ER never takes me seriously.

I've had a CT x-ray, an ultrasound, and I'm stuck waiting until December 22nd for a specialist. I'm at a loss, I don't know if I can wait that long anymore before I start digging out my own stomach. What do I do?

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@cl0wncl0wn Cutting water intake may make constipation worse because the colon reabsorbs water that the body needs. Constipation does cause pain as dense stool is moving through the intestines.

My question would be have you tried an elimination diet? I developed gluten issues and food allergies and had to do this to figure out what foods were bad for me by starting out eating just one thing, for example rice for a few days. If that is fine, add one more food, etc. As long as you feel OK, keep adding more. Eating a lot of vegetables should help. I know if I eat a lot of fruit, it can move through my GI tract quickly. Gluten comes from grains and things made from grain, so cutting out grains will help. The grains that don't have gluten are corn, rice, and oats. I buy "gluten free" oatmeal because when crops are rotated from year to year, there can be cross contamination of other grains that also grew in the field and is mixed into the harvest.

It may help to eliminate all foods with gluten right from the start which is a lot because you have to read labels and understand what ingredients may come from wheat even though it isn't listed on the label, for example, vinegar can be made from wheat or apple cider and you may not know. Constipation can be a symptom of gluten intolerance. This website can give you information:
https://celiac.org/gluten-free-living/gluten-free-foods/

Also, I would ask what medications or supplements do you take? Side effects from medications may possibly cause constipation. Pain medication can do this and is a concern with prescribed medication after fractures or surgery.

You can test your diet and have this information available for your appointment with your specialist. It may take a long time to really figure out what to avoid, but it is worth it when you feel so much better.

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Check out food intolerances. Lactose and gluten being the most glaring.
I had the same problem. Cut out all dairy products for 2 weeks then ate a pint of frozen milk. Instant pain. Then give up gluten Etc till you find your trigger.
(40 years later a dna test confirmed lactose intolerance.) even if you get relief from changing your diet, you may still have small intestinal bacteria overgrowth.
If you still have problems ask for a SIBO breath test. Problem is one of the drugs you take runs around 2500 dollar and insurance probably won’t pay for it. You can go through pharmacy in Canada for under $500. Just need your doctor to send up prescription. Btw they also produce a generic version in India for less than a hundred.
Psyllium for me was constipating, try just wheat bran in juice or water or add to cereal in morning, it will help keep it loose and soft, making it easier to pass.

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I have given up on Doctors for this and many other things. I eat a lot of fiber and am in excellent physical condition, however I take a suppository every couple of days and it works for me. I've been doing this for a few years now and I am okay with this. With Doctors lately everything seems to be ' I can see the problem but can't do anything about it' ( referring to another condition). It's a matter of live with it.

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@cl0wncl0wn

I'm 20, very young to be having problems this bad. When I was younger I had severe depression and anxiety, still do, but I've only ever had the occasional constipation with a quick fix solution then I was fine for years.

Around my birthday I had a severe, and sudden, bout of constipation. It went on for weeks, and when I say constipation I mean ZERO bowel movement, not even a sliver. So, I went to the hospital. I got stigmatized, they told me it was just constipation and I'd be fine, handed me a few packets of laxatives and sent me off.

The laxatives worked, at first, but deep down I knew it wouldn't solve the issue, so I used them sparingly as I saw my family doctor. 6 months later and the issue is still persevering, in fact, it got worse. Now my digestive system is struggling to digest food, I am constantly hungry despite the fact that my digestive system is too slow to eat food normally anymore, if I eat it won't come back out.

I had a small few weeks of no severe issues, and suddenly it got twice as bad recently, as I write this my stomach is screaming at me to eat, as if it's starving. Mind you, I never felt this way before when I woke up until all of this began happening. I considered if food could be a trigger, but none of it makes sense, because I've constantly switched my foods and never had stomach pain, gas or bloating unless I haven't had a bowel movement for days on end.

I have no idea what's wrong with me, other than sharp gut pain, usually around the lower abdomen/belly button, and the fact that I usually I can't have a bowel movement at all unless I bomb my gut with laxatives. I'm at a loss, I'm terrified, and I've been to the ER 3 times and the Urgent Clinic once along with my family doctor 3 times. When I call helplines (yes, I'm that desperate) they tell me to go to the ER, but the ER never takes me seriously.

I've had a CT x-ray, an ultrasound, and I'm stuck waiting until December 22nd for a specialist. I'm at a loss, I don't know if I can wait that long anymore before I start digging out my own stomach. What do I do?

Jump to this post

I assume doctors have checked you out for appendicitis, which could have symptoms like belly button pain and well as constipation.

You need to keep your constipation at bay. I recommend not worrying about dependency for now. Some products are harsh and people cannot tolerate them. Colace 2 in 1 for bad constipation should be considered, at maximum-listed dose. It is gentle, per my Gastro and my experience.

One can get "hunger pangs" from eating the wrong foods or eliminating certain foods you crave. The latter happened to me (and yes, I felt like digging...) Read this about hunger pangs for other information: https://www.medicalnewstoday.com/articles/321725#causes
as well as: https://health.clevelandclinic.org/hunger-pangs/#:~:text=Hunger%20pangs%20can%20occur%20when,like%20your%20belly%20is%20empty.

Regarding your anxiety and depression, are you on any meds? They can cause significant constipation. So can certain supplements (for me -- too much Melatonin). Family doctors may not be well-versed on the bowel effects of the meds they prescribe or supps you take. Do a deep Google on what you are taking to see. (My gastro doctor prescribed Zoloft for my anxiety as it is also beneficial for constipation; I have IBS-C. Other anxiety drugs are beneficial for diarrhea.)

As far as treating anxiety goes via a non-drug route, check out GI Psychology in Burke, VA. They only do virtual appointments. They use deep relaxation therapy (hypnosis) to treat anxiety. I gotta say, it works for me.

In conclusion, keep the constipation at bay. Check out your meds/supps. Consider everyones' posts on their experiences with foods like gluten and FODMAPs. You don't need to have textbook symptoms for something to either work for you or bother you.

P.S. You mentioned slow digestion. That can be sped up with apple cider vinegar -- the good brand -- Bragg. You can Google apple cider vinegar; there are also capsules. As a natural stool lubricant laxative there is mineral oil/olive oil at bedtime. Google that too.

REPLY
@cl0wncl0wn

I'm 20, very young to be having problems this bad. When I was younger I had severe depression and anxiety, still do, but I've only ever had the occasional constipation with a quick fix solution then I was fine for years.

Around my birthday I had a severe, and sudden, bout of constipation. It went on for weeks, and when I say constipation I mean ZERO bowel movement, not even a sliver. So, I went to the hospital. I got stigmatized, they told me it was just constipation and I'd be fine, handed me a few packets of laxatives and sent me off.

The laxatives worked, at first, but deep down I knew it wouldn't solve the issue, so I used them sparingly as I saw my family doctor. 6 months later and the issue is still persevering, in fact, it got worse. Now my digestive system is struggling to digest food, I am constantly hungry despite the fact that my digestive system is too slow to eat food normally anymore, if I eat it won't come back out.

I had a small few weeks of no severe issues, and suddenly it got twice as bad recently, as I write this my stomach is screaming at me to eat, as if it's starving. Mind you, I never felt this way before when I woke up until all of this began happening. I considered if food could be a trigger, but none of it makes sense, because I've constantly switched my foods and never had stomach pain, gas or bloating unless I haven't had a bowel movement for days on end.

I have no idea what's wrong with me, other than sharp gut pain, usually around the lower abdomen/belly button, and the fact that I usually I can't have a bowel movement at all unless I bomb my gut with laxatives. I'm at a loss, I'm terrified, and I've been to the ER 3 times and the Urgent Clinic once along with my family doctor 3 times. When I call helplines (yes, I'm that desperate) they tell me to go to the ER, but the ER never takes me seriously.

I've had a CT x-ray, an ultrasound, and I'm stuck waiting until December 22nd for a specialist. I'm at a loss, I don't know if I can wait that long anymore before I start digging out my own stomach. What do I do?

Jump to this post

I am so sorry you are having such horrible issues, and I feel your pain because I have had the same problem since I was in elementary school, I’m now 67 and still suffer. The only relief I have found is from Australian black licorice. It tastes quite different from what you find in the U.S. and warning, not good if you have high blood pressure. You can find it on the internet, I believe one subscriber said it’s called Kookaburra. My constipation gets so severe that I can’t urinate. Eating more fiber and using Miralax just doesn’t help me at all, but the licorice has worked every time. I wish I could use it regularly, but I have very high blood pressure, so I try to only use it when I’m desperate.
Good luck to you, and on a side note, I waited 3 months to see gastrointestinal doctor, they recommended more fiber in my diet ( Ha)

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@reillyg1013

I am so sorry you are having such horrible issues, and I feel your pain because I have had the same problem since I was in elementary school, I’m now 67 and still suffer. The only relief I have found is from Australian black licorice. It tastes quite different from what you find in the U.S. and warning, not good if you have high blood pressure. You can find it on the internet, I believe one subscriber said it’s called Kookaburra. My constipation gets so severe that I can’t urinate. Eating more fiber and using Miralax just doesn’t help me at all, but the licorice has worked every time. I wish I could use it regularly, but I have very high blood pressure, so I try to only use it when I’m desperate.
Good luck to you, and on a side note, I waited 3 months to see gastrointestinal doctor, they recommended more fiber in my diet ( Ha)

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Yeah the frustrating part of the GI Drs is they all say the same thing - fiber, hydration, exercise, sleep, manage stress, diet - I've tried all that!!!!!! I'm a 68 y/o male, in shape and in the gym 6 or 7 days a week, twice with a trainer. Had both knees replaced last year and I feel good and am in the the best shape since my marathon days in the 80s and 90s.

I finally settled on Miralax before bed, every night, and then setting an alarm for 12pm to take Dulcolax every other night. This has been called "gush and push" - but it mostly works. I haven't seen any signs of tolerance to the bisacodyl in Dulcolax. I'm 68 and don't want to do a shit load (pardon the pun) of tests only to get nowhere. I'm doing what works. If there are consequences, I'll have to deal with it.

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