Priority Referral to Neurologist: How to Prep for 1st Appointment?

The Patient Revolution website has some suggestions and some plan your conversation cards you can download and printout to take with you. It also has a short video to explain how it helps to write down the questions and go over them before the appointment - https://www.patientrevolution.org/tools.

Hi, I can see why you're getting so frustrated. Perhaps if you focus on symptoms that my stem from a particular body system you can organize better. For instance, in neurology it should be on any type of muscle weakness, probably brain fog, sensory nerves (that make your skin feel tingling, etc) or any others that fall under neurology they will take your complaints more serious. You have already been cleared of autoimmunity (though I've had positive ANA and the next time negative). Neurologists rely on nerve stimulation reports to see if there are conduction blocks, axon motor delays, myelination or demyelination, etc. From those studies they are able to determine any abnormalities and can help establish where it's coming from. They also rely on brain imaging. Tell them your worst symptoms that could have a neurological correlation. If you're not sure look it up. I use google scholar to search for related pathology Keep a list close by of the problems that scare you. There's no need to bring up anything that is not neurologically related. I first went to a neurologist when my foot wasn't lifting up, then I got brachial plexitis where I couldn't lift my arm up and I've gone downhill from there lol. Let me know if you have more questions and I'm happy to help you.
(I think it could be a fungus infection under your nail)

Share when symptoms began and all symptoms should be discussed. Some autoimmune diseases have quite varied symptoms that one at a time seem harmless but when combined can be quite debilitating. Try not to let Google be your best resource for possible disease diagnosis and treatment options.

Thanks for this question! I am preparing for a similar appointment because my primary physician thinks I have Parkinson's. I've been wondering how to list stuff that goes back 20 years that might be related. For example, peripheral neuropathy started about 20 years ago. Fasciculations started about 15 years ago. Left hand tremor while at rest started 30 months ago. Balance out of whack started about 18 months ago.

Questions that I've come up with involve prognosis, medications, lifestyle changes, acupuncture, European medication versus US medication

Thanks again for the question. Big help for me!

Thank you! Extremely helpful!! I especially like the story about the lady that wrote down sex when her husband answered that's what he likes the most. Then the physician actually saying that is helpful to know.

I had a somewhat unexpected experience with my primary physician. When I told him I had started using the Facebook dating app. He moved into an unexpected area about the need to use condoms with any new sexual relation or get tested right away. I never expected that. He told me that STD rates are high in the senior population. Getting our activities out where our physician can see them can prove very valuable.

Thank you for the link!