Primary Small Bowel NETS, Liver Mets

@dbamos1945
Hi again,
I have the same as you, discovered in Mar./23 I am Grade 2, Stage 4.
Histotripsy was done in Seattle, Wa. on May 17/24. I was put under for over 7 hrs.
As a Canadian, it wasn't covered here, so it cost me approx. $225,000. (CAD). Ouch!
As it was non-invasive (a targeted ultra-sound) there were almost no after affects. The anesthetic caused a bit of flue like symptoms 2 days later for approx. 4 days.

Approx. a 2 centimetre liver tumor was liquified (destroyed and did not come back).
Partial cavitation was done on approx. 4 others, with no growth yet on those.
Those not touched grew slightly.

I was on Lenvima from 11/05/24 - 06/25 and stopped it when I had a massive heart attack (flatlined) 06/26/25 (suspect it was the Lenvima), changed to Everolimus (which has very few symptoms). So far, I am stable, just waiting to see the results of a recent CT scan and will report if no growth.

I hope this can be helpful for others looking for alternatives.
Ricki

@bubbledalmia

Hi
Please read my response to dbamos as I have detailed out all the info that might be helpful for you.
Good luck!
Ricki

@ricki8: Thank you so much for your time in updating us on your successful Histotripsy procedure! I hope you remain stable and are feeling more like YOU! Please enjoy the best days ahead and know we have many treatments to explore if tumor progression raises its head again. Best health for you! Bette

Thanks Bette
Happy to be a source of information. BTW, at this time, only small tumors can be worked on through Histotripsy, but as discoveries go, hopefully soon they will be able to work on larger and many organs.
Wishing you and all those on this site to 'Hang In' as more advancements are coming out fast and furious. Especially the mRNA vaccines.

@ricki8 Thank you for your reply. I wish you the very best for the future. Hopefully my spots on the liver stay stable and don’t require any further treatment. I am from India, and histotripsy is not available here yet.

Hi @bubbledalmia
There are many new options other than Histotripsy that can help ward off growth. Ask your doctor or Oncologist about options. BTW, my Oncologist is Dr. Gill (she is Indian and really good).
Ricki

@ricki8 thanks.