Primary Myelofibrosis with JAK2: Anyone have Ojjaara (momelotinib)?

Posted by cindyem @cindyem, Oct 26 9:33am

I was wondering if anyone can share their experience with Ojjaara treatment. I started having anemia, high platelets, and high white count two years ago. They finally did a bone marrow because I had a JAK2 mutation. The diagnosis came back as PM low risk. I felt fine.
Now my spleen is enlarged, I’m annemic again, and I’m having non intentional weight loss. To me I believe the weight loss is muscle mass.
I have been referred to a Mayo Clinic specialist, who has ordered Ojjaara to be started next week followed by weekly blood tests. He’s also had CT scans done in advance of my spleen, renal system, and liver. I feel I’m in good hands with his thoroughness.
Let me know what side affects you experienced. Thank you.

Interested in more discussions like this? Go to the Blood Cancers & Disorders Support Group.

My prescription, Ojjaara, arrived late so this will be day three. So far so good. Only a little GI trouble. I’ll let you know in a couple of weeks how it is going.

REPLY

@cindyem, I extended the title of your discussion to see if anyone else has had Ojjaara (momelotinib) offered yet as a treatment option. I think @snakebite was looking into it.

Cindy, how are you doing on Ojjaara (momelotinib)? What is the treatment schedule?

REPLY
Please sign in or register to post a reply.