Hi @clavallee2, I am in remission but had Large B cell CNS Lymphoma. I had three different treatments. I had Rutiximab which is a biologic for 8 treatments, high dose methotrexate which is an infused Chemo and Temodar which is an oral Chemo. The high dose Methotrexate had to be administered in the hospital which was a four day stay every time it was administered. I’d be happy to answer any questions you have about my experiences. I’m three years in remission this month. Two more years, and they call me cured.
I'd like to introduce you to other Connect members who have mentioned this lymphoma, such as @wldflowur13, who mentioned an aunt who had this disease, and @mepowers who mentioned a similar diagnosis. I'd also like you to meet @IndianaScott
Have you been diagnosed with primary central nervous system lymphoma, clavallee2? If so, what treatment are you undergoing currently?
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Hi @clavallee2, I am in remission but had Large B cell CNS Lymphoma. I had three different treatments. I had Rutiximab which is a biologic for 8 treatments, high dose methotrexate which is an infused Chemo and Temodar which is an oral Chemo. The high dose Methotrexate had to be administered in the hospital which was a four day stay every time it was administered. I’d be happy to answer any questions you have about my experiences. I’m three years in remission this month. Two more years, and they call me cured.
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2 ReactionsHi, @clavallee2 - welcome to Mayo Clinic Connect, and thanks for starting a discussion on this type of lymphoma. Here is some information from the National Cancer Institute on primary central nervous system lymphoma that you may find useful https://www.cancer.gov/types/lymphoma/patient/primary-cns-lymphoma-treatment-pdq.
I'd like to introduce you to other Connect members who have mentioned this lymphoma, such as @wldflowur13, who mentioned an aunt who had this disease, and @mepowers who mentioned a similar diagnosis. I'd also like you to meet @IndianaScott
Have you been diagnosed with primary central nervous system lymphoma, clavallee2? If so, what treatment are you undergoing currently?