I want the thank secglc2 for the comments that were made. Like you I placed my trust in the ‘Man upstairs’ and how He was truly my helped me through this part of my life.
When I was first diagnosed I was placed into ICU. I do not remember any of this part of my hospital experience but what my wife states, I was not in a coma but I was incognito for the first week that I was in the hospital. During my first week I was pulling out IV lines and did not understand anything that was stated to me and I did not make any sense when I tried to talk. I was restrained during this time. Thank God I do not remember any of this time. Fortunately I do not remember any of this.
I have had to relearn how to write and also to use my computer. As we came down the the end, a MRI was done. The Hope was that it would show a negative (or normal) result and it was not normal. Thought at this time, with me being older (77), was not necessarily bad but May mean future issues. Well, in March of 2023, it will be 7 years. since I was diagnosed.
As I mentioned earlier, the ‘Man upstairs’ has been with me all along. The truth is this that was with me during the good times as well as the times when you do not know where He is. He is with you more when you don’t see Him, or when you don’t feel Him. Sometimes those are the times He’s there when it’s the most difficult times of your life.
My partner of 15 years was recently diagnosed with PNS Lymphoma. In spite of being 84 years old, his neurosurgeon proposed a craniotomy and removal of the tumor in his left temporal lobe; otherwise, he said that my partner’s quality of life would be jeopardized. He said that he was in general good health so surgery was recommended. About a month before diagnosis, his symptoms were nausea, loss of balance, forgetfulness (he couldn’t figure out the functions of his cellphone, would forget the codes to his security alarm system and the garage, had difficulty with simple math) and not being able to articulate what he wanted to say. He went for surgery on December 1 and now is suffering from extreme confusion and delirium. The prognosis is very grim and the hospital medical team are now proposing moving him to palliative care. Needless to say, we, his family, are devastated (an understatement). He was someone, who in his 80’s golfed twice a week, fished, hiked, traveled extensively and was living an active, beautiful life. The whole thing happened so suddenly and quickly and his quick deterioration after his surgery was totally heartbreaking and overwhelming.
Hi, I don’t mean to give you false hope, however, I believe at this stage, what have you got to lose, right?
So when they removed the tumor, you stated he became confused and had delirium. It’s been 3 weeks now, how is he coming along?
I was diagnosed with Primary CNS Lymphoma iin March 2016, almost 7 years ago. I was in and out of hospital 80 days. But by the middle of September I was done. I am This coming week I will be 77. I had the high levels methotrexate but did not get the auto lymphocyte cells treatment. I was on the older group to get this disease and, as of now, I have SURVIVED! The only i would like to ask those that have been down this road is, have you noticed how you may think your personality has changed?
I was diagnosed with Primary CNS Lymphoma iin March 2016, almost 7 years ago. I was in and out of hospital 80 days. But by the middle of September I was done. I am This coming week I will be 77. I had the high levels methotrexate but did not get the auto lymphocyte cells treatment. I was on the older group to get this disease and, as of now, I have SURVIVED! The only i would like to ask those that have been down this road is, have you noticed how you may think your personality has changed?
I was diagnosed with Primary CNS lymphoma in March 2019. I had 6 months of MRT chemo, then stem cell transplant. My husband tells me I make decisions easier & faster. I feel a sense of peace. I know that Jesus was with me and brought me through.
I was diagnosed with Primary CNS Lymphoma iin March 2016, almost 7 years ago. I was in and out of hospital 80 days. But by the middle of September I was done. I am This coming week I will be 77. I had the high levels methotrexate but did not get the auto lymphocyte cells treatment. I was on the older group to get this disease and, as of now, I have SURVIVED! The only i would like to ask those that have been down this road is, have you noticed how you may think your personality has changed?
If you want to know my full story, send me your email address. In summary, I was diagnosed with primary CNS lymphoma in March 2019 at 58 years of age. I spent a month in hospital in Denver with no diagnosis. I was airlifted to Mayo & diagnosed in 5 days. I was on MRT chemo for 6 months, then stem cell transplant. I owe my recovery to God & doctors at Mayo.
I was never unconscious, like your mother. I’m praying for her recovery.
Ann, I don’t know if it’s appropriate to hand out your number to someone on this forum or not. This was my exact diagnosis with added I formation...Large B cell CNS Lymphoma, I lost motor skills and cognitive skills. Immediately after my brain biopsy, I couldn’t even hold a sandwich or use utensils. I would love to hear your story and share mine. I will tell you that mine has a happy ending. Two more clean MRIs, and I’ll be considered cured. If his treatment is the same as mine, he’s got a tough year ahead of him. If you would like to talk,I’m very open to it. Let me know, and I can give you my contact information. It’s really an overwhelming time.
Hey glad to here about your recovery
My mother is currently suffering from this disease and she has been unconscious because of it for more than one month now with occasional response so I would also want to talk to you if possible. I would love to know the entire story and the treatment you had
I’m so sorry to hear of your experience. God rescued me from CNS Lymphoma with 6 months of chemo, then stem cell transplant. I am cured. I will pray for you that you will feel God’s comfort. Psalm 23:
The Lord is my shepherd; I shall not want. He makes me lie down in green pastures. He leads me beside still waters. He restores my soul. He leads me in paths of righteousness for his name’s sake. Even though I walk through the valley of the shadow of death, I will fear no evil, for you are with me; your rod and your staff, they comfort me. You prepare a table before me in the presence of my enemies; you anoint my head with oil; my cup overflows. Surely goodness and mercy shall follow me all the days of my life, and I shall dwell in the house of the Lord forever.
Thank you very much for your prayers. May I ask at what age you were diagnosed with CNS lymphoma? My understanding is that this option is no longer available after a certain age.
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I want the thank secglc2 for the comments that were made. Like you I placed my trust in the ‘Man upstairs’ and how He was truly my helped me through this part of my life.
When I was first diagnosed I was placed into ICU. I do not remember any of this part of my hospital experience but what my wife states, I was not in a coma but I was incognito for the first week that I was in the hospital. During my first week I was pulling out IV lines and did not understand anything that was stated to me and I did not make any sense when I tried to talk. I was restrained during this time. Thank God I do not remember any of this time. Fortunately I do not remember any of this.
I have had to relearn how to write and also to use my computer. As we came down the the end, a MRI was done. The Hope was that it would show a negative (or normal) result and it was not normal. Thought at this time, with me being older (77), was not necessarily bad but May mean future issues. Well, in March of 2023, it will be 7 years. since I was diagnosed.
As I mentioned earlier, the ‘Man upstairs’ has been with me all along. The truth is this that was with me during the good times as well as the times when you do not know where He is. He is with you more when you don’t see Him, or when you don’t feel Him. Sometimes those are the times He’s there when it’s the most difficult times of your life.
Hi, I don’t mean to give you false hope, however, I believe at this stage, what have you got to lose, right?
So when they removed the tumor, you stated he became confused and had delirium. It’s been 3 weeks now, how is he coming along?
@draettig, what changes have you noticed?
I was diagnosed with Primary CNS lymphoma in March 2019. I had 6 months of MRT chemo, then stem cell transplant. My husband tells me I make decisions easier & faster. I feel a sense of peace. I know that Jesus was with me and brought me through.
I was diagnosed with Primary CNS Lymphoma iin March 2016, almost 7 years ago. I was in and out of hospital 80 days. But by the middle of September I was done. I am This coming week I will be 77. I had the high levels methotrexate but did not get the auto lymphocyte cells treatment. I was on the older group to get this disease and, as of now, I have SURVIVED! The only i would like to ask those that have been down this road is, have you noticed how you may think your personality has changed?
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2 ReactionsI was diagnosed with CNS in August 2019. I would like to hear more about your story/experience please.
If you want to know my full story, send me your email address. In summary, I was diagnosed with primary CNS lymphoma in March 2019 at 58 years of age. I spent a month in hospital in Denver with no diagnosis. I was airlifted to Mayo & diagnosed in 5 days. I was on MRT chemo for 6 months, then stem cell transplant. I owe my recovery to God & doctors at Mayo.
I was never unconscious, like your mother. I’m praying for her recovery.
Hey glad to here about your recovery
My mother is currently suffering from this disease and she has been unconscious because of it for more than one month now with occasional response so I would also want to talk to you if possible. I would love to know the entire story and the treatment you had
I was 58 when diagnosed.
Thank you very much for your prayers. May I ask at what age you were diagnosed with CNS lymphoma? My understanding is that this option is no longer available after a certain age.