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Preparing for upcoming colostomy surgery-any clues on what to expect?

Posted by wifeworry @wifeworry, Jun 4, 2023

Hello - We are preparing for upcoming colostomy surgery. Anyone willing to share their recent experiences? We really don't know what to expect: recovery time, training, follow-up visits, return to work etc. Hospital is 6 hours away, so also trying to figure out how long to plan to stay. Thank You!

Interested in more discussions like this? Go to the Ostomy & J-Pouch Support Group.

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pilottd | @pilottd | Sep 29, 2023
In reply to @rioa21 "I have been dealing with anal cancer for the last year. A PET scan says it’s..." + (show)
Profile picture for rioa21 @rioa21

I have been dealing with anal cancer for the last year. A PET scan says it’s still there while an MRI says is gone. I am having a biopsy this week for the final word. If the cancer is still there I will have APR surgery to remove the anus, rectum and sigmoid colon and have a colostomy. If the cancer is gone I will still need a colostomy. Please share about your experience with your surgery. Any tips I should know about? How long were you in the hospital? I will be having it done at Mayo in Florida.

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Please see my comments on this thread from June. I had a permanent colostomy in Feb, removed anus, rectum and about 2 feet of colon. Mine was done at Rochester Mayo.

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kenc | @kenc | Sep 29, 2023
In reply to @colleenyoung "@klb23 @cjay @marcy1344 @kenc and everyone else in this discussion and support group, I also want..." + (show)
Profile picture for Colleen Young, Connect Director @colleenyoung

@klb23 @cjay @marcy1344 @kenc and everyone else in this discussion and support group, I also want to let you know about the monthly Zoom Ostomy support group hosted by Mayo Clinic ostomy nurse Candy Boyes, R.N., RN-BC, C.W.O.C.N. All welcome.

The meetings are held first Tuesday of the month from 4 to 6 PM Arizona time. The next meeting is next week Oct 3. See details here:
https://connect.mayoclinic.org/event/ostomy-monthly-support-group-6/

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Thank you. I will participate. Of course, time permitting.

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