Post radical prostatectomy (RP) Challenges

I had radical surgery in 2018. I have not had an erection after surgery and have noted a reduction in size to my penis but not testicles. As a result l am unable to pee standing and have to sit. Even then it is causing me stress as l urinate over the testes. I am able to have a dry organism by using a finger to brush the head pf the penis. I would like to have an orioctomy to make my situation more healthy. I live in Malaysia and am 72 years of age

Thanks, how are you doing now a year later?

Thanks how are you doing now?

Bad typing should have said ripped it out.

My surgery was a mixed bag. 90min late start as case ahead of me went long. Brief memory of operating room. Woke up 5hrs later well sedated no pain. Surgery had been paused for frozen section pathology of lymph nodes then restarted. People appeared in recovery room with instructions of how/when to take drugs, manage catheter etc. each admonished “do not strain” gas gave feeling of impending bowel function but actually took til day 4 to normalize. Took some stuff to soften stools. Went back to surgeon in a wk but got his nurse instead. She removed 30or 40cc water from catheter then without warning tipped it out. To my surprise no pain.Their notes sad catheter removed in normal manner. No infection of any kind . A bit of blood in urine 3-4days.Pubic numbness at first gradually diminishing.

I had my RP in November, 2022. I had several of your symptoms for the first week. My medical team told me constipation is likely and to use an over the counter medicine if constipation continued for three days - I used "milk of magnesia" and it took care of constipation. The leakage around catheter/penis during bowel movements (especially when need to push), did occur for me - It was quite uncomfortable, but significantly improved after constipation addressed and obviously completely gone after you "break up with Cathy" (awesome joke my nurse told me during catheter removal). My doctor had me keep the catheter in for 7 days, do did not have a cystoscopy - Thinking this is done if they want to remove catheter in 3-4 days and red colored blood is a side effect post cystoscopy procedure (2nd hand info, no direct knowledge with having a cystoscopy)??

Sorry to hear you have leakage at urethra reconnection point.

Good luck and praying all goes well for you with your challenging recovery.

Jim

I definitely had one of these "semi-violent wake-up from anesthesia" although not sure how "semi" it was. Was being transferred from the DaVinci table to a gurney to be wheeled out when I woke up in severe pain, they knocked me back out pretty quick and I woke up later in recovery.

I had a loss of appetite, constipation and insomnia, I kind of assumed it was because of how long I went without food prior to the operation, it was a full 24 hours as it turned out. I also had a lot of pain internally that I believe was my digestive system "restarting" if you will. By 11 days though, that diminished dramatically with the exception of some insomnia.

"Slight leakage from catheter/penis when doing bowel movement" got that t-shirt as well. It was kind of unnerving for sure, but the doc's crew responded right away with a "that's normal but if it get's any worse let us know". They were big on the "don't push" that's kind of tough though. I just minimized as best as I could.

As far as the Systogram results, I don't have any experience on that as I didn't have any leakage from the interior site that I was aware of, I'll just add a Best of Luck to you!