Post hepatitis C treatment (5 48 week treatment)

Hi I never had any treatment except Harvoni treated for 3 months sept 2015 ended dec 2015 was sick through the treatment and never got better,the body pain is unbearable, feels like it’s in the bones I now have neuropathy in my body,didn’t have any of this before treatment,there is a after hep c treatment group you should follow there are people that have all this side effects

Hello
Yes I have . 5 48 plus a treatment with a drug called incevki ( think I have correct spelling )
I continue to feel the deep leg pain and bone pain
Headaches as well.
I was being treated for chronic pain with orpiids low dose , but after all this BS about them I was taking off
I live in a pain life now. With no one believing that I feel what I do.
No where to turn

Wow Marko! Prior to treatment 18 months ago I was capable of walking anywhere from 15 to 30 km A-day worked out daily weight lifting and moderate to Good energy levels as well,, Since my treatment I feel apthaphy from my chest to my ankles I'm incapable of walking anything greater than 50 yd without severe leg pain,, the pain in my side especially on the right side has increased x5,, shoulders cramp up if I try to do any lifting with either hand,, Sense I'm a veteran and try to get answers from the veterans administration I'm stone walled.

I’m sorry for your health issues I can relate totally
Here’s my take on the veterans a ministration pain and injuries that happened to veterans wall and service or illnesses are I would say one of the most expensive in the veterans administration system so easy for them the people in charge
To Stonewall us so they save money if they don’t treat us and I have been told if I don’t like it here at the back of ministration go somewhere else but the fact is I was treated for almost 15 years for this illness at the veterans a ministration no other position on the outside wants to touch it so I’m thinking this is us being done by the Veterans Administration to save money
And the less money that these departments within the Veterans Administration use the upper echelon receives a bigger bonus at the end of the year
I have been to many doctors in the civilian world none of which even understands what we who have taken interferon and ribavirin so many times go through
Along with my degenerative disc disease in my cervical spine from two major surgeries on my neck and one on my lower back the increase in pain just from that
Maine has adopted
Zero tolerance to pain management of opiates they are blaming read the people who have suffered injuries and I disabled completely the care we need we are not the ones fueling the opiate crisis State of Maine I am only a 61-year-old male with disabilities from injuries and I feel abandoned

Non responder Peg/Interferon (6 month treatment) every symptom you could think of. There wasn't an orifice in my body that wasn't filled with lesions & blisters. My hair didn't fall out completely, but it turned to a gummy, gluey substance when washing it. Horrid headaches, trimmers, cold/hot, mental fog like blank spots in my thinking and no clarity, you name it I had it. I never recovered from the treatment my cognitive ability, emotional stamina and physical stamina never returned. Fast forward 10-12 years later the Harvoni treatment "cured" the HCV, but afterwards I did a downhill spiral never to recover. I used to have flare ups, or long runs of being bedridden and really bad days. But after the harvoni things exponentially increased. The pain is worse, the headaches are worse, the brain fog is worse in the "fatigue" isn't fatigue I feel like crawling everywhere, I don't call that fatigue, it's utter exhaustion. Now I am on thyroid medication, blood glucose medication, pain meds, every supplement you can name, and thankfully have my cholesterol is under control. I still spend most of my time laying down, I force myself to get up and interact when family comes around because I don't want to be a burden. I'm embarrassed because I feel like everyone thinks it's in my head. The doctors told me it was for nearly 20 years before they figured out a name for Hepatitis C, "you're too young", "it's all in your head", "you're healthy", "your blood work is good", "you should seek counseling", blah, blah, blah.. As the decades wore on my age influenced any possible diagnosis, of which I have none to explain my quality of life, other than the hypothyroidism & glucose issues. Most have no idea how I actually live, except for maybe my mother, she calls me nearly daily to ask how I'm doing! 🤣😂 I used to work until 2:00 or 3:00 a.m. sleep for a few hours and get back and work a full day. Not in years! It's sad what they've done to us and nobody will recognize it. I barely hang on with our business, I could never hold down a job. My life has become non-existent. I spent five years in the bed unable to get up and interact. Some sort of minor remission allowed me to get up. Many, many times I miss out on family & social events. But hey! I don't look sick. 🤷🏻‍♀️ It's all 🐂💩.

10+ yrs post pegasys treatment the 48 week torture was good at getting the Hep-c but just about killed me. Still have no life. Cant work and stuck in this constant sickness. always nausea EVERY day. I think I would have passed in the treatment if I knew it would ruin my life