Post hemi-laminectomy nerve pain has increased.

Posted by joelhoward1092 @joelhoward1092, Mar 31 4:25pm

I am about 3 weeks post hemi-laminectomy at L4-L5. The day of surgery and the next 4 days all of my pre surgery symptoms were gone. This included nerve pain in the feet, ankles and calves. I also had weakness in both legs, along with intense pain around my tailbone and sacrum that got much worse with walking. All of these were 95-100% better immediately following surgery. However about day 5 or 6, some symptoms started coming back. I contacted my surgeon who suggested it was due to post surgical inflammation. They prescribed steroids, which I have now been on for 2 weeks. I have seen very little, if any improvement. My surgeon is still saying irritated nerves and inflammation due to surgery. I would say the nerve pain is worse than it was before surgery and the other symptoms are about as bad.

Has anyone experienced this? Did the symptoms legitimately get better with time? If so, how long did take? They want me to start PT, but I am very hesitant as I believe it will increase my pain.

I appreciate any feedback!

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Wow, it sounds like you have had it rough. How have you been doing since the fusion?

I have done exactly what you suggested. I asked for another MRI and this time I asked for a lumbar and pelvis MRI. Since much of my pain is in the sactum area, I thought it wise to get the pelvic MRI too. Also, there was a 3 month span from my original MRI until my surgery. Who knows what else could have happened in that amount of time. Surprisingly I got no pushback from the doctor. We will see if insurance approves it. They just sent in the request yesterday.

As always, I really appreciate the feedback and advice.

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@joelhoward1092

Thank you for your input. I really appreciate it.

How long had you been having pain/issues before you had surgery?

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I’m not quite sure at this point, I know I participated in physical therapy, acupuncture, CBD oil, medical appointments that didn’t find the problem and medical marijuana. So, I’m guessing at least two years of hard work trying to correct a problem that was incorrectly diagnosed. When it was finally correctly diagnosed, I tried an unsuccessful injection and then scheduled surgery, which was about a six month process. I’m glad I tried all those interventions (even with the wrong diagnosis) as it gave me a stronger core and the opportunity to participate in therapeutic pool time, which I continue to do.

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@migizii

I’m not quite sure at this point, I know I participated in physical therapy, acupuncture, CBD oil, medical appointments that didn’t find the problem and medical marijuana. So, I’m guessing at least two years of hard work trying to correct a problem that was incorrectly diagnosed. When it was finally correctly diagnosed, I tried an unsuccessful injection and then scheduled surgery, which was about a six month process. I’m glad I tried all those interventions (even with the wrong diagnosis) as it gave me a stronger core and the opportunity to participate in therapeutic pool time, which I continue to do.

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Do you have lots of nerve pain in your legs, feet, etc.?

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I have nerve pain in my left foot but I have so many problems with this foot and this issue was also present prior to my back issues that it is impossible to know if it’s related to the surgery, Otherwise, I do not have any nerve issues.

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Do you take Lyrica or anything for that?

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No they got worse and I am almost nine months out. Drs will blame scar tissue buildup.

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@ccollins

No they got worse and I am almost nine months out. Drs will blame scar tissue buildup.

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@ccollins Welcome to Connect. I know from my surgeries (spine fusion C5-C6, and ankle fracture fixation) that scar tissue does cause tightness which does cause pain. What you can do about it is to work with a physical therapist who does myofascial release to loosen the scar tissue. This would be something to request at your next follow up.

Here is a link to our discussion about myofascial release.

Neuropathy - "Myofascial Release Therapy (MFR) for treating compression and pain"
https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/

Have you heard of myofascial release before?

Jennifer

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Thanks Jennifer. I have heard of it, but I don’t believe I have ever discussed it with a PT. I do have my first PT appointment next Tuesday, so I will ask.

On that note. The caudal injection and follow up MRI’s were all denied by insurance!

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@joelhoward1092

Thanks to everyone who has commented.

They did not do a fusion, as the disc at that level was not herniated, but it was bulging.

Almost all symptoms were gone for 4-5 days post surgery, but now they are all back, along with some new ones.

I just had my 2 week follow up and reported most of this, but all they did was give me a prescription strength anti-inflammatory and refill my pain meds. Obviously I don’t want to take pain meds, but at this point I don’t think I have a choice. Plus, they don’t really help that much.

The surgeon is still going with the post surgery inflammation theory. Which I guess could be true, but it sure seems like something else is going on.

For those of you that have had similar surgery, was the post surgery inflammation a problem. I know I am early in the recovery process, but it is crazy to me that I was better for a few days and then everything came back.

Also, from the time I started having issues until surgery, was over 4 months.

I can’t help but wonder if this is now permanent nerve damage due to the elapsed time.

I appreciate any feedback from anyone with experience!

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I haven’t had lumbar surgery yet, but I have had 4 upper cervical surgeries. On the last one, inflammation occurred 4-5 days after surgery, while I was still hospitalized. I got IV meds which are much stronger, so I imagine that's why it went away w/in a week. As the nurse explained to me, if you're in pain--take the pain meds. The stress of being in pain, does not help you. Give yourself time. Try p/t. The movement may make you feel better. If it hurts, tell them. They'll adjust what they're doing, or even apply heat & a massage. I hope you feel better soon. If not, there are pain mgmt. doctors too.

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Thanks everyone for your advice. I have been feeling a bit better over the last few days, but I have gone back to taking pain meds a couple of times a day. I hated to do it, but it has helped me be more active, which then helps me mentally. The pain management doctor is still working on getting my injection approved. The insurance company is denying for ridiculous reasons. I am hoping if that gets approved it will really help me.

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