Dealing with Post Concussion Symptoms One Year Later. Suggestions?

Posted by fightingfibro0505 @fightingfibro0505, Jun 11, 2023

Hey everyone! I suffered an injury one year ago and I am still having concussion-like symptoms; migraines, slight vertigo, light sensitivity, eye pain, dizziness, lack of coordination, and severe fatigue. I have no clue what is going on.. it’s different than chronic fatigue or anything like that. Does anyone have a good suggestion or idea???

All my scans are clear too!

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Profile picture for holinka2 @holinka2

I have had 4 major accidents that were major head injuries plus a few other things and never went to a doctor. At age 68 ( all this while in my early 20’s.)
My problem has not been diagnosed yet but have had depression for over 30 years and I’m not good at making decisions that are essential and important. Seems like I lack the cognitive part of that. Is it too late diagnosis?

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@holinka2

Never too late.
I had one or more TBI’s in Jan of 2024.
I am still struggling with headaches, confusion, pain.
Go see that doctor.

Dolly Prenzel

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I encourage you to listen to the Podcast-
The COUNTERSTRAIN Movement.
After 30 yrs of seeking help with a TBI ,
that’s what has saved me when nothing else did.

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Maybe loss see a neurologist. That's the direction I was pointed to with my post cs. I went to rehab. It helped a lot. They were really patient and worked with what I needed

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Profile picture for Lisa Lucier, Moderator @lisalucier

Hi @rachelmc7ey - welcome to Mayo Clinic Connect. Three concussions is a lot. I had one that took me a month to recover from, and that was a lot to deal with. I can't imagine.

When you say you are struggling quite a bit, can you share a bit more about what you are struggling with (e.g., screens, headache, bright lights)?

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Hi @lisalucier. Thank you for your response. I’m sorry you had that concussion - I’m sure that was a difficult month!
Yes, I get bad headaches, have noise and light sensitivity, and can feel nauseas. I recently purchased motion sickness glasses for the car, and they seemed to make a difference!

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Profile picture for rachelmc7ey @rachelmc7ey

Hi, I’m new to this group! Been suffering with PCS since taking a bad fall in 2024. It’s my 3rd concussion, and I’m still struggling quite a bit. We are taking a family roadtrip next week, and I’m packing all the things to try to help make the car ride more manageable. Wondering if anyone has any advice or helpful tips? Thanks!

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Hi @rachelmc7ey - welcome to Mayo Clinic Connect. Three concussions is a lot. I had one that took me a month to recover from, and that was a lot to deal with. I can't imagine.

When you say you are struggling quite a bit, can you share a bit more about what you are struggling with (e.g., screens, headache, bright lights)?

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Hi, I’m new to this group! Been suffering with PCS since taking a bad fall in 2024. It’s my 3rd concussion, and I’m still struggling quite a bit. We are taking a family roadtrip next week, and I’m packing all the things to try to help make the car ride more manageable. Wondering if anyone has any advice or helpful tips? Thanks!

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Profile picture for holinka2 @holinka2

I have had 4 major accidents that were major head injuries plus a few other things and never went to a doctor. At age 68 ( all this while in my early 20’s.)
My problem has not been diagnosed yet but have had depression for over 30 years and I’m not good at making decisions that are essential and important. Seems like I lack the cognitive part of that. Is it too late diagnosis?

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It isn't too late, and it is good to get an evaluation by a neurologist. After a TBI we often have therapy for tools to get around any limitations we might have. Some tools come just with getting older, such as lists to remember things. I have trouble remembering words, so I tell my brain to get back to me when it finds them. One is never to old to learn new things (I'm 69).

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Profile picture for kayabbott @kayabbott

My moderate TBI was 30 years ago. I still have an irregular EEG for my left temporal (word finding) and basal frontal lobes (lost smell and taste grew back over 8 years). I still have issues finding and remembering words, especially numbers and peoples' names. Probably 80% of the recovery was in the first 1.5 years; the remaining took ~6 years. I had just completed my outline for my doctoral dissertation and went for a ride; I woke up in the ER with blood coming out of an ear. Being a scientist with a TBI is mixed in that we live in our brains, but we also know how to navigate them. Recovery from a TBI is brutal emotionally, both from ourselves and others. Be kind to yourself and know that healing occurs, but is a slow stairstep process. New learning, hobbies, and all the rehab steps are important to rewiring.

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Nm

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Profile picture for holinka2 @holinka2

I have had 4 major accidents that were major head injuries plus a few other things and never went to a doctor. At age 68 ( all this while in my early 20’s.)
My problem has not been diagnosed yet but have had depression for over 30 years and I’m not good at making decisions that are essential and important. Seems like I lack the cognitive part of that. Is it too late diagnosis?

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@holinka2, that's a good question to ask your doctor. I found this information:
https://www.asnr.org/patientinfo/conditions/tbi.shtml.
"Long after the injury, MRI as well as CT may demonstrate brain atrophy, which results when dead or injured brain tissue is reabsorbed following TBI. Because injured brain tissue may not completely recover following TBI, changes due to TBI may be detectable many years after an injury."

Have you considered getting an opinion with a neurologist specializing in TBI?

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Profile picture for kayabbott @kayabbott

My moderate TBI was 30 years ago. I still have an irregular EEG for my left temporal (word finding) and basal frontal lobes (lost smell and taste grew back over 8 years). I still have issues finding and remembering words, especially numbers and peoples' names. Probably 80% of the recovery was in the first 1.5 years; the remaining took ~6 years. I had just completed my outline for my doctoral dissertation and went for a ride; I woke up in the ER with blood coming out of an ear. Being a scientist with a TBI is mixed in that we live in our brains, but we also know how to navigate them. Recovery from a TBI is brutal emotionally, both from ourselves and others. Be kind to yourself and know that healing occurs, but is a slow stairstep process. New learning, hobbies, and all the rehab steps are important to rewiring.

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That’s encouraging to know!!

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