Polycythemia: Are you asymptomatic?

Posted by slk2421 @slk2421, Oct 9, 2022

Any idea of % of polycythemia patients that are asymptomatic?

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@lwengel

Diagnosed in March 2021. Asymptomatic so far.

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My wife was actually diagnosed with Polycythemia Vera in 1978. Back then it wasn’t known as a “cancer” just a blood disorder. Blood letting was the only treatment. When she became pregnant in 1986, she was a-symptomatic from then until 2017 when a routine blood test showed “blasts” as well as abnormal platelets and red cells. Currently her only symptoms are itchy skin, fatigue, spleanomeglia, and heat intolerance with hot spells.
My point is this disease can go undetected for decades. She is now in a “Milyofibrocis stage.

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Diagnosed September 2022. Was having headaches, dizziness, fatigue, numbness and tingling in arms and fingers, itchy skin, blurry vision. On and off for several months.

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Thanks for the reply.
Can I ask what your course of treatment is?

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Diagnosed in March 2021. Asymptomatic so far.

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