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PN: Do You Think About Things Like This, Too?
Hello,
I'm one of those who enjoys discussing lifestyle questions surrounding living with PN. Mine is idiopathic sensory-motor PN, without pain but with lots of problems with balance and walking, even short distances. Two lifestyle questions have been tumbling around in my mind lately:
PN as a GIFT. In many ways, PN has made me slow down and re-learn to appreciate so much in my life that living a fast-paced lifestyle has made me pass by. For example, I'm finding much more pleasure in reading now that I can't be "on the go" 24/7. PN, in unexpected ways, has given me other gifts, too. Recognizing these gifts helps me rise above the various ways PN has curtailed my life.
PN as an EXCUSE. I've found that I have to be very careful, or else I'll be saying no to so many opportunities that, once passed up, I'll only learn regret. I must watch myself, or I'll find myself pleading, "No, I can't do that (because of my PN)," when I really can. I hope always to remain realistic about what I can and can't do––or can do, but not quite as well––but I never want my PN to become too ready an excuse for living a good life.
Do these sorts of questions sound familiar? How do you answer them? I'm curious.
Cheers!
Ray (@ray666)
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I've got the diagnosis:
https://drive.google.com/file/d/1cCmnnvZNnoECrShptTcRqKyqPOpXmvIz/view?usp=sharingBy yours truly,
@erichendrix
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1 ReactionHappy Thursday! Want to know a little more about Ray?
Managing the give & take of life: Meet @ray666
https://connect.mayoclinic.org/blog/about-connect/newsfeed-post/managing-the-give-take-of-life-meet-ray666/
Great story, I was wondering if you were a Vet or not? Your story was kinda reading my long and painful list of ailments. It’s true what you said the way PN makes you feel, not to mention the pain but the emotional trauma from it. It’s bad enough dealing with the everyday pains that come with being 77 years old but feeling useless because you can’t do the things physically like you use too. Feeling useless is a real feeling and a dangerous one. I lost my wife in January of this year after 28 years of marriage and it’s been horrible to get use to no one to talk to but the dog and he doesn’t answer me by the way! I haven’t started hearing my dog talking as of yet. Ha
One thing I want to say and it grounds me and that is, there are a lot of people in worst shape than me so be thankful you can still get out of bed and feed that dog. Thanks for letting me speak, hopefully it will help others