1. < Polymyalgia Rheumatica (PMR)

PMR without ever taking prednisone

Posted by bren2023 @bren2023, 19 hours ago

Is anyone here living with PMR without ever taking prednisone or any other pharmaceuticals ?
I am still trying to get a diagnosis but I have all the symptoms of PMR but the labs don't show it. I have flare ups that are really bad for weeks and then at times 50% better for no reason. My pc doctor said "no that doesn't happen with PMR" but she has no idea what I do have. I have a confirmed by biopsy auto immune condition of the scalp called lichen planopilaris that was treated with steroid oil.

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Mentor
John, Volunteer Mentor | @johnbishop | 18 hours ago

@bren2023, I'm sure you are not alone with the PMR symptoms but normal labs. Quite a few others have mentioned PMR with normal blood work if you want to scan through the comments and discussions - https://connect.mayoclinic.org/search/?search=pmr+with+normal+esr+and+crp. There are other conditions that have similar symptoms as PMR:
-- 5 Diseases That Can Mimic Polymyalgia Rheumatica: https://www.everydayhealth.com/rheumatic-diseases/diseases-that-can-mimic-polymyalgia-rheumatica/

You mentioned in a previous post that you have seen multiple primary care docs and a rheumatologist. Did your rheumatologist also agree that you don't have PMR or suggest any other treatments besides prednisone that might help?

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1 reply
bren2023 | @bren2023 | 17 hours ago
In reply to @johnbishop "@bren2023, I'm sure you are not alone with the PMR symptoms but normal labs. Quite a..." + (show)
@johnbishop

@bren2023, I'm sure you are not alone with the PMR symptoms but normal labs. Quite a few others have mentioned PMR with normal blood work if you want to scan through the comments and discussions - https://connect.mayoclinic.org/search/?search=pmr+with+normal+esr+and+crp. There are other conditions that have similar symptoms as PMR:
-- 5 Diseases That Can Mimic Polymyalgia Rheumatica: https://www.everydayhealth.com/rheumatic-diseases/diseases-that-can-mimic-polymyalgia-rheumatica/

You mentioned in a previous post that you have seen multiple primary care docs and a rheumatologist. Did your rheumatologist also agree that you don't have PMR or suggest any other treatments besides prednisone that might help?

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The rheumatologist I saw in 2023 said I have fibromyalgia but I don't have the right symptoms. I have all the symptoms of PMR instead. That was in Tucson and I have moved to Gilbert since. I saw pc dr yesterday.
I just got my blood tests results and everything is negative.I’m trying to get an appt with rheumatologist. I don’t know what is wrong with me. So much pain and my legs are so weak. I can’t believe the test are neg for inflammation.

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