PMR expert?

Welcome @pmrnewbie, I would try to see a rheumatologist. Was it your doctor who told you that you have PMR? Can you get a referral?

You need to see a rheumy because they also need to eliminate any other autoimmune problems. Next while looking for an expert on the topic that can see you in a reasonable time frame you might go out to YouTube and watch some videos on the basics, read thru some conversations here on Mayo Connect, and if you are inclined go to the National Institute of Health to look at papers that have been posted there. My understanding is every article they post has been peer reviewed, with the vast majority being individual cases or small samples - the vast majority are not double blind. Informational for sure but just not extensive. PMR is not really well understood since there is not a medical test that is used to positively diagnosis it. It is diagnosed based on your symptoms, blood work and elimination of other problems that can be tested for. Sometimes it is not diagnosed until the patient responds to steroid treatments. There is not a single protocol that works for all. You will need to build a strong relationship with your treating doctor since successful communications will be key. You might want to keep in mind this is a journey not an event. I wish you well on your journey with PMR.