Please help seronegative inflammatory arthritis

what Dr's are u seeing?? actual Rheumatologists?? I was diagnosed Seronegative, which led to Rheumatoid arthritis. that was 4 or 5 years ago I am now rheumatoid /osteo /fibro. governments really .......................... ( I am in Australia not the U.K but our government does what it can to stop people getting the support they need.)

I’ve got x2 suspected diagnosis privately. But the bloods are imaging are not matching despite inflammation visible. It’s contrast scans I need. I paid £930 for a bone scan spect ct to try and get the clarity and they denied me the spect. It’s gate keeping biologics. I was refused a referral back to rheumatology too, every branch I’ve held onto broken, despite enough evidence to move forward with treatment. I’m seeing a DR in 2 weeks private again in hope he can help me as he deals with these conditions. Interesting the multi site sclerosis happened for me before inflammation outwardly presented. Apparently enthesopathy ossification it’s called. Rare it happens this way. I’ve almost given up but it’s so severe I can’t I have a child

@sas2012 Welcome to Mayo Clinic Connect! We’re all volunteers here so we can’t diagnose or treat any disease or condition. But, the members will gladly share their experiences and what worked or didn’t work for them.
Is there anything we can help you with now?

I am so sorry, as a fellow Brit all I can tell you is that the NHS at the moment is utterly broken and it's a fight to get any help at all. I'm very lucky I'm hugely serum positive but still find myself in a situation where I wrote begging to know what to do about serious side effects and don't even get my emails acknowledged, let alone answered. I'm currently in a 2 month pause of having no DMARD because I can't take HCQ and there's no appointment available to start me on MTX.

That doesn't help you, except maybe to know that you aren't alone?

There is a herb called Cats Claw that acts very much like methotrexate which you could perhaps try. I'm also taking MSM, liquorice root and curcumin (not turmeric, curcumin) all of which are proven and tested against inflammation and arthritis. Let me know of you want details of where to buy, they're all on Ebay but only some sources can be trusted.

I'm waiting on my latest set of, private, blood tests but I think I've managed to put myself in remission, given the huge improvements in my vasculitis and the absence of a single flare.

Good luck getting the treatment you need.

To add, a reputable source told me that the NHS will not prescribe you a biologic until you have proved that hydroxychloroquine, methotrexate and sulfasalazine won't work.

All cost driven, of course.

Good luck!

I’m really not sure if Sulfasalazine worked I barely remember what happened those 4 months, I think I just sat there like a blob or something. The methotrexate only works if I don’t mess up and eat something wrong. All it takes is just a little paprika or maybe chili and I don’t have to move to hurt. Guess we’ll see what’s next.

I have already tried hydroxychloraquine privately but teh NHS are not even admitting i have an inflammatory disease even though its spread everywhere now...They are sending me for heamatology tests and trying to say theres no enthesistis on MRI yet sclerosis, but as i say no contrast offered to show the atcive inflammation. I know what their game is, ive been gaslit, refused a referral back to rhuematologyi had toget x2 diagnosis private and they are still not accepting it..... 3rd time lucky i seeing DR Barr at Leedsin two weeks he has an excellent rep for helping patients justlike me that have been let down by the NHS. Wish me luck x

Enthesistis is very difficult to image and a standard MRI is not enough. My shouders were so swollen on the day, yet they say no inflammation.....its insane! I have photo proo, everything, but they wont listen or offer a doppler ultrasound

So sorry youre having trouble too it really is broken isnt it? Ive spent all my savings trying to get better 3 years out of work...Please let me know how you get on

Good luck! I thank my lucky stars every time I read stories like yours that I'm so conclusively serum positive! It's a real battle if you aren't, they just don't want to admit that you need expensive drugs.

I hope you get the help you need.