Please help seronegative inflammatory arthritis

Posted by sas2012 @sas2012, 16 hours ago

Really been through the mill. NHS are not accepting diagnosis and focussing on sclerosis only not active inflammation. Lower back pain since 20s got significantly worse 2017 - costochondritis and back spasms 2020 by 2023 moved to sternum ribs and T9 middle spine, tendon in right arm, wrist now it’s in every joint and I’m still left without treatment. Standard MRIs only no contrast given of spine and SI joints. The pain is so severe like I’ve been crystallised from the inside it’s severe tissue ripping agony. I’ve not worked in 3 years. They are still trying to say it’s something else when I know it’s what the private said axial and peripheral spondyloarthritis. No DMARD yet no one acknowledging the spread as I’m seronegative and hla5b7 negative. I’m seeing a private again in 2 weeks in hope they will help me

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tisme | @tisme | 13 hours ago

what Dr's are u seeing?? actual Rheumatologists?? I was diagnosed Seronegative, which led to Rheumatoid arthritis. that was 4 or 5 years ago I am now rheumatoid /osteo /fibro. governments really .......................... ( I am in Australia not the U.K but our government does what it can to stop people getting the support they need.)

sas2012 | @sas2012 | 8 hours ago

I’ve got x2 suspected diagnosis privately. But the bloods are imaging are not matching despite inflammation visible. It’s contrast scans I need. I paid £930 for a bone scan spect ct to try and get the clarity and they denied me the spect. It’s gate keeping biologics. I was refused a referral back to rheumatology too, every branch I’ve held onto broken, despite enough evidence to move forward with treatment. I’m seeing a DR in 2 weeks private again in hope he can help me as he deals with these conditions. Interesting the multi site sclerosis happened for me before inflammation outwardly presented. Apparently enthesopathy ossification it’s called. Rare it happens this way. I’ve almost given up but it’s so severe I can’t I have a child