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Platelet Count Variance
I was first diagnosed with PV two years ago (no idea how long I had it before then) and have been having monthly CBC blood tests as part of my treatment. My platelet count seems to vary a lot from test to test. From the 200’s to the 600’s.
My doctor seems more concerned when it’s low than when it’s high, and adjusts my hydroxyurea dosage (frequency) on occasion. During the heat spell we have been having in our region I got pretty dehydrated and the count dropped quite a bit. Then I started consuming a high amount of water and the count went way up (this is opposite of what I thought would be the case) Anyone have a similar experience or thoughts on what might be going on? Thanks
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Hubby had platelet count around 900. He stopped drinking alcohol and it went back to normal...good luck !
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1 ReactionThanks Casey. I had stopped consuming alcohol a few years before my PV diagnosis so I don’t have your hubby’s experience to compare to. I’m just curious if overall fluid levels affect platelet count. Bob
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1 ReactionI’ve been on HU since Jan ‘22. Mine fluctuate 400-700. Doctor told me it may be related to any sicknesses going around and/or stress. He talks about upping my dosage, but personally I’m fine where it is at. For 10 years it was 950-1250 without any meds or symptoms. I’m 51 and very active so that may be contributing to lack of symptoms.
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2 ReactionsThose counts are below 10k correct?
Hydroxyurea will improve the count?
Diagnosed with MDS about 3 years ago. My platelets have now dropped to between 19-23k. Promacta has been prescribed.
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1 Reactionmy count bounced all around during the first year on HU. It has been fairly stable except when I got shingles shot, then dropped ....but it has been recovering slowly since the shot.
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1 ReactionMy 72 yr. old husband had a platelet count of 900 and the doctors didn't seem too concerned. It is now normal after much diet & alcohol restrictions...good luck !