Pituitary tumor symptoms: joint, muscle and body aches

I'm on the mend, I take an afternoon nap. Nose is healing, blood and fluid leakages stopped at about five days. My mind has to remind me not to lift or strain, off to see ear nose throat Doctor tomorrow, will drive myself. I was lucky no vision loss, dizziness and joint soreness gone, energy is slowly returning to this 71 year old.
The technical innovations, like "Stealth MRI" really reduce the risk and help get ALL of the Tumor, I would do it again, with way less concern about the "what ifs", based on this experience.

I'm on the mend, I take an afternoon nap. Nose is healing, blood and fluid leakages stopped at about five days. My mind has to remind me not to lift or strain, off to see ear nose throat Doctor tomorrow, will drive myself. I was lucky no vision loss, dizziness and joint soreness gone, energy is slowly returning to this 71 year old.
The technical innovations, like "Stealth MRI" really reduce the risk and help get ALL of the Tumor, I would do it again, with way less concern about the "what ifs", based on this experience.

Welcome, Captain. I'm sure others like @skhollandmt @astaingegerdm @kapple @cheryl1 will join me in welcoming you.

Wow, surgery is recently fresh for you and sounds like it was successful and provided immediate relief. How is your recovery from surgery going?

My Pituitary tumor was pushing upward on the pituitary gland (according to the surgeon) my hips, knees and lower back were incredibly painful, zero energy, dizzy but vision was good, Soreness, dizzyness and fatigue ended immediately with surgery on 11/16/21.
Fluid oozing has stopped nose healing, sinus headache that Advil takes care of, Happy Camper!

Hello @ananda33 and welcome to Mayo Clinic Connect. Thank you for joining the conversation and sharing your journey to find what is working for you. How did you come across this as a form of therapy?

I was diagnosed with pituitary adenoma and successfully had a large tumor surgically removed almost 15 years ago. For years before my surgery, and years after my surgery, I also suffered from joint and muscle pain. It got so bad I could hardly bend over to tie my own shoes. I was suffering and in constant pain. As a young athletic person, I just couldn't understand where this pain was coming from. I then discovered cold water therapy (ice baths) and infrared saunas! (Also referred to as fire and ice therapy) I found that the combination of doing 20 minutes in my infrared Sauna and then plunging into an ice bath (40 to 55 degrees depending on what you can handle for 5 to 10 minutes) turned out to be an absolute miracle! After so many medications, physical therapy, special diets...I tried it all and spent a ton of money on my quest to find pain relief ( I even got myself addicted to pain killers and ended up in drug rehab) After all those nightmares and searching I still can't believe that something so basic and so simple as cold water therapy has literally changed my life! I can truthfully say that over 80% of my pain is gone! If you want more info you can youtube the iceman also known as Wim Hof. Wim Hof explains the benefits of ice in a much more detailed way, but get this, the rush of adrenalin from the cold also regulates hormones and is said to trigger the same opioid receptors in our brains to act as a natural pain killer! It also enhanced my overall mood and I feel much happier after an ice bath! It is such a miracle! I never have ever posted a reply on a message board like this before, but after reading your post I just had to spread the good news! Take the plunge it will change your life!

Hi. I have been experiencing excruciating and debilitating joint and muscle pain for several months now. My lab work clears me of any rheumatoid issues. However, my rheumatologist diagnosed me with gout. I was on Allopurinol for a couple months with symptoms only worsening. I stopped the medication because I don't have the other typical gout symptoms. My primary doc, endocronologist, and podiatrist also ruled gout out. I was diagnosed with a pituitary tumor in November. I can't find a doctor who can help. Nobody seems to know why I have body pain and nobody can tell me if it relates to the tumor. I am ver frustrated living like this. I am just wondering if anyone else out there with a pituitary tumor might be experiencing constant cracking bones and popping joints with awful body pain that affects their daily activities/routine.

I'm hopeful that it is the cause but it seems like that totally depends on whichever doctor you are talking to! We had discussed having it removed in November of last year but covid delayed everything. I reached out to Mayo at that time and have multiple consultations upcoming. I love living in Montana but definitely feel like I need a tertiary center to help find a solution. I've become so depressed over this it is hard to function. So I will wait to see if the Mayo team agrees this is myasthenia, the pituitary tumor, or something completely different.