Pituitary tumor symptoms: joint, muscle and body aches

I am having same problems! Diagnosed with enlarged pituitary this last summer and have incredible pain n my joints, muscles and nerves, feel as if my joints are dissolving, getting worse daily!!Endocrinologist found a low sodium level, so was on restricted fluid for several weeks, getting blood tests every day for a week, sodium level back up to normal, still no change🤷🏼‍♀️!
Neural surgeon wants to “wait and see”, new MRI is in July!!
Meantime I am suffering and getting worse every day!!
Found a new GP, thankfully, who LISTENED, and is sending me for a bunch of blood tests and referring me to a chronic pain clinic!
Any suggestions gratefully accepted

In 2000 I had 2 pituitary tumor operations. Large tumor, but they had to take out the p-gland and I have had full hormone replacement since, I turn 60 in a couples of months. I am having pain that sometimes is off the scale. The dr. say's it has no correlation to the pnet I have. I beg to differ. They don't know enough about this cancer to really know. I have 23 tumors in and on my liver with that many or more on my lymph glands and else were within my upper torso. I had no pain with the pituitary issue but that was me and we are all different. Hang in their and get a specialist in net for sure.

Anthony

My endo at mayo called 2 nights ago. Dr Meeks. He has such a calming manner. I have had very loose bowel movements since my surgery May 7th. He doesn't think related to the removal of adrenal glands. Suggested I see gastro intestinal Dr. I see a local Dr tomorrow. He also said to stop the metformin since my glucose testing 125 and below in mornings. The burning in legs still bad. I guess I am going to take slow and one step at a time. Thanks so much for your concern. I thank Dr Chaichana at Mayo for doing my 2 pituatary surgeries. It is amazing what he can do. I do have much weakness in legs. This is common with Cushings disease. You lose all muscle and I mean all! I am turning 63 the 29th and the bod looks like 83.

I am having same problems! Diagnosed with enlarged pituitary this last summer and have incredible pain n my joints, muscles and nerves, feel as if my joints are dissolving, getting worse daily!!Endocrinologist found a low sodium level, so was on restricted fluid for several weeks, getting blood tests every day for a week, sodium level back up to normal, still no change🤷🏼‍♀️!
Neural surgeon wants to “wait and see”, new MRI is in July!!
Meantime I am suffering and getting worse every day!!
Found a new GP, thankfully, who LISTENED, and is sending me for a bunch of blood tests and referring me to a chronic pain clinic!
Any suggestions gratefully accepted

What a relief to remove the tumor from such a dangerous location.
My daughter’s adenoma also involved the carotid artery. The surgeon was 95% sure he got it all. Annual MRIs stayed normal and no symptoms since.

The Surgeons have come a long way, I wish Her well!

Hi. I have been experiencing excruciating and debilitating joint and muscle pain for several months now. My lab work clears me of any rheumatoid issues. However, my rheumatologist diagnosed me with gout. I was on Allopurinol for a couple months with symptoms only worsening. I stopped the medication because I don't have the other typical gout symptoms. My primary doc, endocronologist, and podiatrist also ruled gout out. I was diagnosed with a pituitary tumor in November. I can't find a doctor who can help. Nobody seems to know why I have body pain and nobody can tell me if it relates to the tumor. I am ver frustrated living like this. I am just wondering if anyone else out there with a pituitary tumor might be experiencing constant cracking bones and popping joints with awful body pain that affects their daily activities/routine.

What a relief to remove the tumor from such a dangerous location.
My daughter’s adenoma also involved the carotid artery. The surgeon was 95% sure he got it all. Annual MRIs stayed normal and no symptoms since.