Pituitary tumor symptoms: joint, muscle and body aches

I hope I get better. I have had no life in over 6 months. By body has gone through so much. I hope to be able to have some fun again!

I am going to physical trainer 2 to 3 times a week. I could never walk 1 mile let alone 2. My BLA was 11 weeks ago after 2 pituatary surgeries failed. I ha e sever aches and burning in legs too

Amazingly, I asked my PCP for the name of a Therapist who might give me a list of exercises. Neither my Mayo endocrinologist or my PCP had done so. I'm sure the next time they will though.

I am walking 2.5 miles almost every day which does exhaust me physically. I am also seeing a physical therapist to help me strengthen myself. It was my doctor’s recommendation. I want to rebuild my muscles but I need to be realistic. It only been 4 months since my surgery and then 33 radiation treatments With chemo pills. I am still taking a stronger dose of chemo pills each month. Be patient with yourself!

Hello @jodiforan,

I'm so sorry that you had to wait so long before you got back your strength. Who was it who advised you to seek physical therapy?

After my surgery, I did not realize I could regain my muscle mass: I thought I would always be weak - no doc encouraged otherwise. Only 6 years later, did I engage the help of a physical therapist. My advice is to begin exercising the day you return home!

@cheryl1 - If you had surgery 2 months ago your body is still in healing mode. I admire your determination to regain your muscle mass. You will get there soon.
Recuperation is not easy- your body has been through the wringer, but now it will get better day by day.

I'm so sorry to hear of your struggles right now, @cheryl1. Have you or your trainer noticed any improvement in your muscle? Does your doctor offer you any other suggestions?

I have had 2 pit surgeries and both adrenal glands removed on 5/7. I have been going to personal trainer to attempt getting back muscle. It is both painful and difficult.

I had a few joint aches, but primarily I lost muscularity. I couldn't do activities I wanted - ie walk a distance. Also check your face - is it puffy. Check your blood cortisol values. Have you been diagnosed as having Cushings disease? I had a benign pituitary tumor, that constantly send out messages of run-flight to my adrenal glands. which in turn drove my muscles to move, move, move - not that I literally always did. Gradually over several years my muscularity lessened and I thought I was just getting older! By the time I arrived at Mayo, I couldn't raise my arms. I had a large biopsy of my pituitary, and both adrenal glands removed. Subsequent MRIs has shown it has not grown. Please work diligently with a physical therapist to recover your muscles. I waited 8 years and only recently realized that I needed to be doing so immediately after returning home. I take daily cortisol pills and any time I recognize I am under stress. Good luck.