Pins and needles plus vibrations SFN?

Posted by tinatoren @tinatoren, Feb 24, 2023

Hi. I've been suffering from a total body pins and needles or micro vibrating felling that came on in 2 days in December. Plus some jerking in body. I had some pins and needles in legs and seat before but then it spread to entire body including face, gums, tounge etc. I've been trying to find a neurologist since but in the mean time I've been trying to hold on to my sanity and it's getting harder. I have many other symptoms and it could be a systemic disease but I was just wondering if you can have this paresthesia feeling all over body for 3 months before you start getting pain and loss of sensation to show that it is polyneuropathy?
Or do the pins and numbness and pain come together in one limb at the time?
I have something that feels like buzzing, vibrating, pricking everywhere as soon as I relax. I also have twitching in hand, lips, tounge sometimes but it comes and goes. I know some of you suffer horribly with neuropathic pain and I'm ashamed to say that this is so devastating for me but everytime I try and fall asleep I can feel my lips, face and entire body tingling and vibrating and it is such a horrible feeling that I can only sleep a few hours when I'm exhausted . And then I have to wake up to this horror again.Sometimes it takes 24 hours before I fall asleep.
I don't think I can live with this if there is no treatment. It's a 24/7 feeling of being tortured and it's in my whole face too.
I thought maybe in a neuropathy group someone maybe know if there was any medication to quiet down nerve tingling because Im starting to feel that I would rather be dead. Tried benzodiazepam and that does not help at all. Ive been bedridden for a cluster of symptoms for over 9 weeks and I may have weeks to endure before a diagnosis but frankly I don't know that my mind can do it anymore. I know native Americans used to sometime bury enemies in anthills and I'm experiencing a milder version that and how do I get through the next hour??? I'd honestly rather have both my legs sawed off than this. Is there any hope anybody can give me??

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lubelle | @lubelle | Feb 28, 2023

In reply to @katcollins "Have you asked your doctor for a nerve blocker like Gabapentin? It makes a big difference..." + (show)

Did Gabapentin make you sleep all day?

katcollins | @katcollins | Feb 28, 2023

In reply to @lubelle "Did Gabapentin make you sleep all day?" + (show)

Gabepentin made me very drowsy at first. It has been a little over a month and I am adjusting to it. I had to play around with the timing of my second dose, that makes me the most drowsy. I have not returned to work yet. That will be the true test.
Kat

katcollins | @katcollins | Feb 28, 2023

In reply to @tinatoren "Thanks I got an appointment for a neurologist on Monday where I will have 45 min..." + (show)

Good luck Tina! I hope it goes well and you get answers.
Kat

lubelle | @lubelle | Feb 28, 2023

In reply to @katcollins "Gabepentin made me very drowsy at first. It has been a little over a month and..." + (show)

Thank you for the info. My son recently also tried microdose of mushrooms, supervised dosing. He said he felt really good and hopeful, but then on day 3 the burning returned (which he hasn't had burning for a few months). The burning was the same as when they prescribed Lexapro to help him reduce the anxiety of SFN. It seems to start off by improving, then spirals down into the bad burn of the skin.
Please keep us up on your progress with Gaba and returning to work. I keep hoping more energy from different clinics/doctors are directed towards neuropathy.
Best of luck!
Lubelle