Pheochromocytoma? In adrenal

Posted by kimkimmiepoo @kimkimmiepoo, Apr 27 6:20pm

Has anyone else experienced this? Any suggestions I’m dying

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

Turkey, Volunteer Mentor | @tomrennie | Apr 28 9:53am

@kimkimmiepoo Hi and welcome to Mayo Connect. Were you diagnosed with a pheochromocytoma? What led up to the diagnosis?

kevinmonroemi | @kevinmonroemi | Apr 28 11:57am

Never hear of this until your posting I have read about it today! Sorry you have to deal with this. When and where were you diagnosed? Why did you say you are dying?

Teresa, Volunteer Mentor | @hopeful33250 | May 2 12:36pm

Hello @kimkimmiepoo,

Is this a new diagnosis for you? As I am not familiar with this disorder, I found some information on Mayo Clinic's website. Here is a link to that article:
https://www.mayoclinic.org/diseases-conditions/pheochromocytoma/symptoms-causes/syc-20355367
From this article, it appears that this disorder is usually benign. Have you begun any treatment, or has surgery been suggested? Finally, how are you feeling?