Persistent urgency even after urinating, 3 months after prostatectomy

Posted by bcer85 @bcer85, Aug 20 6:48pm

My prostatectomy was 3 months ago. My incontinence has been complicated by an unrelenting urgency to pee. Oddly, it's most acute right after emptying my bladder. Throughout the day I can't help feeling the need to rush to the toilet, so I think about it all the time. I fall asleep only with a sleep medication. It seems to be getting worse. It's debilitating. I never had this problem prior to surgery. I've been told this kind of urgency is not normal. My urologist performed a cystoscopy but found no physical cause and had no explanation. He recommended I double my dosage of Mirabegron for an overactive bladder. I'll do that, but frankly I've noticed little, if any, relief from this med. He also suggested seeing a pelvic floor therapist (I've already been doing kegels) and considering botox injections for the bladder. Has anyone else had a similar experience? Did you find a way to get some relief? Should I seek a second opinion from another urologist?

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

Last summer when I was dealing with incontinence from radiation cystitis, I found this UK site helpful:
https://www.cancerresearchuk.org/about-cancer/prostate-cancer/practical-emotional-support/bladder-problems

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@jasonfarmer

Yes I to have had this problem feeling to need to pee all the time. Even right after going 5 minutes later feel need to go again. I to had the camera into the bladder and everything was good even said I have good muscle control. My bladder is smaller doctor said. Medication including mybetriq helped but only a little. I am now on Gemtesa it helps quite a lot I would say it helps a lot. The next step for me would be bladder Botox if Gemtesa did not work but I am do well on Gemtesa. Prostatectomy was 14 months ago. Hope this helps

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Your experience sounds very similar to mine. Good to know. Thanks much for the advice about Gemtesa. I'll ask my urologist about it. (I'm currently taking Mirabegron (Myrbetriq).)

14 months--I'm sorry you've had this discomfort for so long. Not fair.

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@kenpelan

Just to second the note about bladder spasms. I had similar problem after Robotic surgery. Meds reduced the urgency.

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I had robotic as well . I have bladder spasms. What is the name of the medication and dose ? Thank you.

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A few thoughts on what might be going on and what to do about it. As background, I'm ten years retired as an Ob-Gyn doc, and had my own RALP for Gleason 7 (4+3) a year ago April.

1. During the surgery, the bladder is cut into and repaired. The healing process causes increased sensitivity in the repaired areas. This sensitivity after the surgery, when urine is splashing around in there, is the source of the increased sensation of needing to void. We give in to that, and over time, the bladder loses some of its elasticity as it becomes accustomed to smaller volumes of urine.
2. IMO, the immediate increased sense of need to urinate after voiding (for me, that happens about 5 minutes after I go) is caused by, as others have said, bladder spasms, not unlike a cramp after a muscle is used to it's extreme. Those spasms, I think, are the result of the first spurts of "new" urine coming into the bladder from the kidneys. Of course, there is no real need to void, as the bladder is pretty empty at that point. So ignoring the sensation is my "treatment" of choice.
3. The ongoing sense of urgency can be treated by "bladder training". As some have said, Kegel's are a necessary component of that But alone, they are not sufficient.
4. Key Point: THE BLADDER IS A MUSCLE, partially under voluntary control, and as such can be trained, just as we would train other muscles in a gym. The goal is to train the bladder to accept increasingly larger volumes of urine without setting off signals of need to void. Don't forget, all of us trained our bladders to do this when we were 2-3 years old. So, even a child can do it!
5. So how do we train this muscle? It takes discipline and persistence. Not be using weights or reps, though. My preferred method involves following a regimented plan to urinate by the clock, not by sensation, and record both the frequency and the amount of urine produced.
6. First, though, you need to be sure that you are sufficiently emptying your bladder. Your Urologist can do an in-office ultrasound the document your residual urine volume after voiding. If it's less than 50-70 milliliters, you're good to go to start training. If you are not emptying completely, you need to discuss Plan B with your Urologist.
7. Plan A: Identify how long you can "hold it" before the urge to void becomes demanding, This may be 30-90 minutes, I hope. Subtract 5-10 minutes from that time, and start going to the bathroom after, say, 25 minutes no matter whether you need to or not. Every couple of days, add a few minutes (2-4) to the frequency.
8. Engineers and scientists will tell us we only can improve what we can measure. So keep track of when you void in a little diary. And, for extra credit, pee in a container which can measure the urine volume and record that. Watching both those numbers improve over time can be very re-assuring.

But how to deal with that irritating sense of needing to go? To go back to the weight training analogy, when we go to the gym and lift weights, or when we go out for a run, we ignore the sensation that "this is uncomfortable", and persist through the negative sensations because we know that some good will come of it. "No pain, no gain". As long as you are not actually losing urine - urge incontinence - it's better to persist with the training plan than giving in to the sensation.

In summary, trying to "hold it" is counter productive. Your bladder needs to "work out" in order to increase its elasticity. That takes time, just as it takes time to go from bench pressing, say, 70 pounds to 150.

A final note. I don't like to take drugs that affect my whole body for a localized problem. I found the bladder drugs' side effects to be not worth the supposed benefit they gave.

REPLY
@trusam1

A few thoughts on what might be going on and what to do about it. As background, I'm ten years retired as an Ob-Gyn doc, and had my own RALP for Gleason 7 (4+3) a year ago April.

1. During the surgery, the bladder is cut into and repaired. The healing process causes increased sensitivity in the repaired areas. This sensitivity after the surgery, when urine is splashing around in there, is the source of the increased sensation of needing to void. We give in to that, and over time, the bladder loses some of its elasticity as it becomes accustomed to smaller volumes of urine.
2. IMO, the immediate increased sense of need to urinate after voiding (for me, that happens about 5 minutes after I go) is caused by, as others have said, bladder spasms, not unlike a cramp after a muscle is used to it's extreme. Those spasms, I think, are the result of the first spurts of "new" urine coming into the bladder from the kidneys. Of course, there is no real need to void, as the bladder is pretty empty at that point. So ignoring the sensation is my "treatment" of choice.
3. The ongoing sense of urgency can be treated by "bladder training". As some have said, Kegel's are a necessary component of that But alone, they are not sufficient.
4. Key Point: THE BLADDER IS A MUSCLE, partially under voluntary control, and as such can be trained, just as we would train other muscles in a gym. The goal is to train the bladder to accept increasingly larger volumes of urine without setting off signals of need to void. Don't forget, all of us trained our bladders to do this when we were 2-3 years old. So, even a child can do it!
5. So how do we train this muscle? It takes discipline and persistence. Not be using weights or reps, though. My preferred method involves following a regimented plan to urinate by the clock, not by sensation, and record both the frequency and the amount of urine produced.
6. First, though, you need to be sure that you are sufficiently emptying your bladder. Your Urologist can do an in-office ultrasound the document your residual urine volume after voiding. If it's less than 50-70 milliliters, you're good to go to start training. If you are not emptying completely, you need to discuss Plan B with your Urologist.
7. Plan A: Identify how long you can "hold it" before the urge to void becomes demanding, This may be 30-90 minutes, I hope. Subtract 5-10 minutes from that time, and start going to the bathroom after, say, 25 minutes no matter whether you need to or not. Every couple of days, add a few minutes (2-4) to the frequency.
8. Engineers and scientists will tell us we only can improve what we can measure. So keep track of when you void in a little diary. And, for extra credit, pee in a container which can measure the urine volume and record that. Watching both those numbers improve over time can be very re-assuring.

But how to deal with that irritating sense of needing to go? To go back to the weight training analogy, when we go to the gym and lift weights, or when we go out for a run, we ignore the sensation that "this is uncomfortable", and persist through the negative sensations because we know that some good will come of it. "No pain, no gain". As long as you are not actually losing urine - urge incontinence - it's better to persist with the training plan than giving in to the sensation.

In summary, trying to "hold it" is counter productive. Your bladder needs to "work out" in order to increase its elasticity. That takes time, just as it takes time to go from bench pressing, say, 70 pounds to 150.

A final note. I don't like to take drugs that affect my whole body for a localized problem. I found the bladder drugs' side effects to be not worth the supposed benefit they gave.

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@trusam1 wrote "A final note. I don't like to take drugs that affect my whole body for a localized problem. I found the bladder drugs' side effects to be not worth the supposed benefit they gave."

Thanks for your post. In most cases, I agree with the statement above — since I'm already on cancer meds, I prefer to keep other prescription meds down to the bare essentials — but the bladder problems that hit me last summer, a year after radiation, were completely out of control. I tried everything you mention in your post (and more, like reducing or eliminating irritants from my diet) over a couple of months, but things kept getting worse, to the point I was afraid to leave the house and was waking up every 20 minutes over the night (pads and briefs weren't always enough).

My urologist offered me Myrbetriq (Mirabegron) to relax my detrusor muscle, which was responding involuntarily to pain from radition cystitis (confirmed via cystoscopy) and back-to-back UTIs. At 25 mg/day, it helped a little, but not much. When we went to 50 mg/day, I had everything under control in a couple of weeks, and started to get up to go to the bathroom only a couple of times/night and generally get my life back. I threw out the pads and briefs.

After a few months stabilising, I cut back to 25 mg/day and was still OK. This spring, I titrated off very gradually for a few weeks, and I've been nearly a month completely off Myrbetriq without a recurrence of the bladder issues. Some nights I sleep right through to 6:00 am, and others, I get up only once, which is quite acceptable. I still have a certain amount of bladder pain, but I've been able to train my (involuntary) detrusor muscle not to respond to it as vigorously.

I've dealt with a lot on my own without "helper" meds since my stage 4 PCa diagnosis and spinal compression in 2021, but this one was too much for me, and I was grateful for a little pharmaceutical assistance to get me over the hump so that I could do the kind of training you recommend.

REPLY
@trusam1

A few thoughts on what might be going on and what to do about it. As background, I'm ten years retired as an Ob-Gyn doc, and had my own RALP for Gleason 7 (4+3) a year ago April.

1. During the surgery, the bladder is cut into and repaired. The healing process causes increased sensitivity in the repaired areas. This sensitivity after the surgery, when urine is splashing around in there, is the source of the increased sensation of needing to void. We give in to that, and over time, the bladder loses some of its elasticity as it becomes accustomed to smaller volumes of urine.
2. IMO, the immediate increased sense of need to urinate after voiding (for me, that happens about 5 minutes after I go) is caused by, as others have said, bladder spasms, not unlike a cramp after a muscle is used to it's extreme. Those spasms, I think, are the result of the first spurts of "new" urine coming into the bladder from the kidneys. Of course, there is no real need to void, as the bladder is pretty empty at that point. So ignoring the sensation is my "treatment" of choice.
3. The ongoing sense of urgency can be treated by "bladder training". As some have said, Kegel's are a necessary component of that But alone, they are not sufficient.
4. Key Point: THE BLADDER IS A MUSCLE, partially under voluntary control, and as such can be trained, just as we would train other muscles in a gym. The goal is to train the bladder to accept increasingly larger volumes of urine without setting off signals of need to void. Don't forget, all of us trained our bladders to do this when we were 2-3 years old. So, even a child can do it!
5. So how do we train this muscle? It takes discipline and persistence. Not be using weights or reps, though. My preferred method involves following a regimented plan to urinate by the clock, not by sensation, and record both the frequency and the amount of urine produced.
6. First, though, you need to be sure that you are sufficiently emptying your bladder. Your Urologist can do an in-office ultrasound the document your residual urine volume after voiding. If it's less than 50-70 milliliters, you're good to go to start training. If you are not emptying completely, you need to discuss Plan B with your Urologist.
7. Plan A: Identify how long you can "hold it" before the urge to void becomes demanding, This may be 30-90 minutes, I hope. Subtract 5-10 minutes from that time, and start going to the bathroom after, say, 25 minutes no matter whether you need to or not. Every couple of days, add a few minutes (2-4) to the frequency.
8. Engineers and scientists will tell us we only can improve what we can measure. So keep track of when you void in a little diary. And, for extra credit, pee in a container which can measure the urine volume and record that. Watching both those numbers improve over time can be very re-assuring.

But how to deal with that irritating sense of needing to go? To go back to the weight training analogy, when we go to the gym and lift weights, or when we go out for a run, we ignore the sensation that "this is uncomfortable", and persist through the negative sensations because we know that some good will come of it. "No pain, no gain". As long as you are not actually losing urine - urge incontinence - it's better to persist with the training plan than giving in to the sensation.

In summary, trying to "hold it" is counter productive. Your bladder needs to "work out" in order to increase its elasticity. That takes time, just as it takes time to go from bench pressing, say, 70 pounds to 150.

A final note. I don't like to take drugs that affect my whole body for a localized problem. I found the bladder drugs' side effects to be not worth the supposed benefit they gave.

Jump to this post

Outstanding post! I’m currently undergoing pelvic floor therapy and you echoed everything my PT told me. I’ve been charting my urinary schedule and stretching it a little each day and I’ve made leaps and bounds of progress.

Thanks again for the excellent post and good luck to you on your journey.

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@firespooks

I had robotic as well . I have bladder spasms. What is the name of the medication and dose ? Thank you.

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My urologist had me take trospium 20mg. 1 tablet twice per day. Sometimes more if the spasms are worse.

REPLY

Try vesicare along with your myrbetriq.

REPLY
@trusam1

A few thoughts on what might be going on and what to do about it. As background, I'm ten years retired as an Ob-Gyn doc, and had my own RALP for Gleason 7 (4+3) a year ago April.

1. During the surgery, the bladder is cut into and repaired. The healing process causes increased sensitivity in the repaired areas. This sensitivity after the surgery, when urine is splashing around in there, is the source of the increased sensation of needing to void. We give in to that, and over time, the bladder loses some of its elasticity as it becomes accustomed to smaller volumes of urine.
2. IMO, the immediate increased sense of need to urinate after voiding (for me, that happens about 5 minutes after I go) is caused by, as others have said, bladder spasms, not unlike a cramp after a muscle is used to it's extreme. Those spasms, I think, are the result of the first spurts of "new" urine coming into the bladder from the kidneys. Of course, there is no real need to void, as the bladder is pretty empty at that point. So ignoring the sensation is my "treatment" of choice.
3. The ongoing sense of urgency can be treated by "bladder training". As some have said, Kegel's are a necessary component of that But alone, they are not sufficient.
4. Key Point: THE BLADDER IS A MUSCLE, partially under voluntary control, and as such can be trained, just as we would train other muscles in a gym. The goal is to train the bladder to accept increasingly larger volumes of urine without setting off signals of need to void. Don't forget, all of us trained our bladders to do this when we were 2-3 years old. So, even a child can do it!
5. So how do we train this muscle? It takes discipline and persistence. Not be using weights or reps, though. My preferred method involves following a regimented plan to urinate by the clock, not by sensation, and record both the frequency and the amount of urine produced.
6. First, though, you need to be sure that you are sufficiently emptying your bladder. Your Urologist can do an in-office ultrasound the document your residual urine volume after voiding. If it's less than 50-70 milliliters, you're good to go to start training. If you are not emptying completely, you need to discuss Plan B with your Urologist.
7. Plan A: Identify how long you can "hold it" before the urge to void becomes demanding, This may be 30-90 minutes, I hope. Subtract 5-10 minutes from that time, and start going to the bathroom after, say, 25 minutes no matter whether you need to or not. Every couple of days, add a few minutes (2-4) to the frequency.
8. Engineers and scientists will tell us we only can improve what we can measure. So keep track of when you void in a little diary. And, for extra credit, pee in a container which can measure the urine volume and record that. Watching both those numbers improve over time can be very re-assuring.

But how to deal with that irritating sense of needing to go? To go back to the weight training analogy, when we go to the gym and lift weights, or when we go out for a run, we ignore the sensation that "this is uncomfortable", and persist through the negative sensations because we know that some good will come of it. "No pain, no gain". As long as you are not actually losing urine - urge incontinence - it's better to persist with the training plan than giving in to the sensation.

In summary, trying to "hold it" is counter productive. Your bladder needs to "work out" in order to increase its elasticity. That takes time, just as it takes time to go from bench pressing, say, 70 pounds to 150.

A final note. I don't like to take drugs that affect my whole body for a localized problem. I found the bladder drugs' side effects to be not worth the supposed benefit they gave.

Jump to this post

Thanks Trusam1 for this detailed post! The training plan makes sense to me and jibes with what my urologist told me.

I’m confused at your summary: “In summary, trying to "hold it" is counter productive.” It seems like the goal of the training program is to extend the time between voids. So I’m not clear why you say that “holding it” is counterproductive. Will you please explain? Thanks.

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@firespooks

I had robotic as well . I have bladder spasms. What is the name of the medication and dose ? Thank you.

Jump to this post

I went thru 4 different meds before one worked. You need to find a
urologist who will work with you

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