My husband is on year 11 with Pseudomyxoma Peritonei, mucinous carcinoma of the appendix.
He has had three cytoreduction surgeries (debulking) each listing 12-15 hours. He has had one with EPIC heated Chemo, one with HIPEC and one without chemo.
Recovery has varied. After the first surgery, his recovery was a good 6 months. After the second surgery with HIPEC, he had to adjust some of his eating habits as he could no longer tolerate dairy. After the third, he has a colostomy and some post op issues with a rectal fistula. However, he felt great.
As for now, the mucin is back, but growing slowly. He lives a full life and we are blessed to have had the best surgeons care for him.
This picture was taken a couple weeks ago!
I would be happy to answer any questions or just be a sounding block from people living with this disease.
Dntsass01, I’m sure @scjoyce will appreciate connecting with you. I realize it was 20 years ago, but do you recall what the recovery from surgery was like for your son’s peritoneal cancer?
Hello @scjoyce and welcome to Mayo Clinic Connect. I appreciate your post and you sharing about your cancer diagnoses. If you care to share more, how long ago was your surgery? How is your recovery coming along?
I look forward to hearing from you again. Will you post an update?
Hi @turbo48, I moved your message from the Blood Cancers group to the Cancer group (https://connect.mayoclinic.org/group/cancer/). Peritoneal cancer is a rare cancer that develops in a thin layer of tissue that lines the abdomen. It also covers the uterus, bladder, and rectum. I also added it to the Gynecological Cancer group (https://connect.mayoclinic.org/group/gynecologic-cancer/) since peritoneal cancer acts and looks like ovarian cancer.
Turbo, what treatment have you had? How are you doing?
Colleen Young, Connect Director | @colleenyoung | Apr 28, 2021
Hi @turbo48, I moved your message from the Blood Cancers group to the Cancer group (https://connect.mayoclinic.org/group/cancer/). Peritoneal cancer is a rare cancer that develops in a thin layer of tissue that lines the abdomen. It also covers the uterus, bladder, and rectum. I also added it to the Gynecological Cancer group (https://connect.mayoclinic.org/group/gynecologic-cancer/) since peritoneal cancer acts and looks like ovarian cancer.
Turbo, what treatment have you had? How are you doing?
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My husband is on year 11 with Pseudomyxoma Peritonei, mucinous carcinoma of the appendix.
He has had three cytoreduction surgeries (debulking) each listing 12-15 hours. He has had one with EPIC heated Chemo, one with HIPEC and one without chemo.
Recovery has varied. After the first surgery, his recovery was a good 6 months. After the second surgery with HIPEC, he had to adjust some of his eating habits as he could no longer tolerate dairy. After the third, he has a colostomy and some post op issues with a rectal fistula. However, he felt great.
As for now, the mucin is back, but growing slowly. He lives a full life and we are blessed to have had the best surgeons care for him.
This picture was taken a couple weeks ago!
I would be happy to answer any questions or just be a sounding block from people living with this disease.
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14 ReactionsDntsass01, I’m sure @scjoyce will appreciate connecting with you. I realize it was 20 years ago, but do you recall what the recovery from surgery was like for your son’s peritoneal cancer?
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1 ReactionOur son had surgery for peritoneal cancer, which is even more rare in men. He was 18 at the time. This was 20 years ago.
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7 ReactionsI was hoping to hear from other patients with peritoneal cacinomatosis. On their recovery process
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2 ReactionsHello @scjoyce and welcome to Mayo Clinic Connect. I appreciate your post and you sharing about your cancer diagnoses. If you care to share more, how long ago was your surgery? How is your recovery coming along?
I look forward to hearing from you again. Will you post an update?
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2 ReactionsI had surgery for stage 3 ovarian cancer and peritoneal cancer
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5 ReactionsHi @turbo48, I moved your message from the Blood Cancers group to the Cancer group (https://connect.mayoclinic.org/group/cancer/). Peritoneal cancer is a rare cancer that develops in a thin layer of tissue that lines the abdomen. It also covers the uterus, bladder, and rectum. I also added it to the Gynecological Cancer group (https://connect.mayoclinic.org/group/gynecologic-cancer/) since peritoneal cancer acts and looks like ovarian cancer.
Turbo, what treatment have you had? How are you doing?
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Hug
5 Reactions