Looking to connect with people who have non-diabetic neuropathy

What time do you take the Pregabalin? How much in the morning at bedtime etc. do you take any in the morning. Does it make you sleepy?nauseated? Etc

I take Pregabalin together with the Oxcarabzepine in the AM and then again in the evening. I tolerate it very well without side effects.

Hi, I too have pin and have the burning, tingling pain somewhat under control with pregabalin, two before bed, no pain at all and ok all night, then two in the morning. However, does anyone else have terrible pain in the soles of your feet when walking more than a few steps. It literally stops me dead, I can walk for a bit, then stop, pain subsides somewhat, but severe when I resume walking. Also, legs from the knee down feel like they are made of cement or something heavy, I do have osteoarthritis in knees, but doctors cannot make a connection, any thoughts?? Thank you Terry

The first medication my pain doctor prescribed was Gabapentin but right away I felt depressed. He replaced it with Pregabalin 100 mg. 4 times a day. Then in April 2022 I fell (not related to meds or even to neuropathy), fractured my hip, and since then have been taking 100mg. Pregabalin with 50mg. Tramadol. This has been a very good combination (no side effects). He actually prescribed the Tramadol 4 times a day but I don't find the 4th dose necessary. Last summer I developed RLS (restless leg syndrome) and am also taking Ropinirole HCL 0.5mg. at night - it worked from the very first night. I try to take the Pregabalin/Tramadol combination about 6 hours apart - so, morning, late afternoon, and night. The device my pain doctor would implant is Abbott's ProclaimXR. The reason your nurse friend shared with you is precisely why I am reluctantly proceeding. (One can back out at any time). Since it doesn't improve my imbalance, I'm not sure if the outcome is worth the risks. My only problem with the Pregabalin is that it is still expensive even after Medicare pays into it.

What is iVIG? I have been seeing a neurologist but she put me on pregabelin which has proved to be not very effective.

I have periphera l neuropathy too-I see a pt specialiizing in neuropathy and have learned 5 exercises to do 3 x a day and take Effexor half pills every 12 hours-it will be a struggle all our lives but wont kill us my dr says-hope this helps you Mike

Hi @bryce49, There is another discussion on your question here:
-- IVIG Infusions: https://connect.mayoclinic.org/discussion/ivig-infusions/

Thank you so much

Life is like a Box of Chocolate

your very welcome-Mike Storman from e sac ca

I have neuropathy (numbness only no tingling or pain) resulting from monoclonal gammopathy of undetermined significance. Does anyone else have this? Does anyone know of treatments that will help? Thank you.