1. < Neuropathy
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Looking to connect with people who have non-diabetic neuropathy

Posted by Ann broussard @user_ch98d0b5c, Aug 6, 2018

Would. Like to find people with this issue

Interested in more discussions like this? Go to the Neuropathy Support Group.

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alfer | @alfer | Oct 23, 2022
In reply to @cherman "What essential oils work for you b I take alpha lipoic acid 600 mg high potency..." + (show)
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What essential oils work for you b
I take alpha lipoic acid 600 mg high potency b vitamins 800 mg if magnesium.

I would try essential oils.

Thanks

I

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I use two products both give me relief. They are: “Outback” and “Neuropathy”. Both are reasonable and can be purchased on Amazon.com.

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NJ Ed | @njed | Oct 23, 2022
In reply to @alfer "I to have used successfully a combination of R-ALA, B-complex vitamins especially B-12 and essential oils...." + (show)
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I to have used successfully a combination of R-ALA, B-complex vitamins especially B-12 and essential oils. I know it works because I tried to stop it and the pain came back big time! Also try compression socks or open toe sleeves. They seem to help as well.

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To alfer - I also have been taking B-12, B-1 and B-6 for about 4 years. It's the kind of thing you don't know if it helps or not.

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raebaby | @raebaby | Oct 24, 2022

Try VoxxLife products that you wear (patches, insoles or socks.) They have greatly helped the pain in my feet and improved my balance. They are not supplements.

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tessie63 | @tessie63 | Oct 24, 2022
In reply to @njed "To pamelaz - ALA - Alpha Lipoic Acid. Neuro doc at University of PA suggested it,..." + (show)
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To pamelaz - ALA - Alpha Lipoic Acid. Neuro doc at University of PA suggested it, I find it helps. I recently ordered on Amazon R-ALA and I think it helps a little more with improved feeling in feet. What is unfortunate is that the only way I would know if it were now not helping would be to discontinue which I don't want to do. By the way, I'm also on seizure control med. Ed

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I used ALA for two months and did not find any difference with my neuropathy. Some would say it takes longer but after this time I should have felt a hint of change in my condition and I did not.

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NJ Ed | @njed | Oct 25, 2022
In reply to @tessie63 "I used ALA for two months and did not find any difference with my neuropathy. Some..." + (show)
Profile picture for tessie63 @tessie63

I used ALA for two months and did not find any difference with my neuropathy. Some would say it takes longer but after this time I should have felt a hint of change in my condition and I did not.

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tessie63 - One thing for sure we can all learn through this journey and that is this - what might help for some may not help for others. I think it is a matter of trying different things and hopefully, something will help.

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deluga | @deluga | Oct 25, 2022
In reply to @pamelaz "I have neuropathy bad. Tried Gabapentin, Cymbalta and Lyrica now my seizure medicines are effecting it...." + (show)
Profile picture for pamelaz @pamelaz

I have neuropathy bad. Tried Gabapentin, Cymbalta and Lyrica now my seizure medicines are effecting it. What is ALA?

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ALA is Alpha Lipoic Acid. It is a prescription drug in Europe but over-the-counter for some reason in US. My Neurologist prescribed it for me and it has helped me tremendously. Most doctors though don't know about it because pharmaceutical sales aren't pushing it on them. Brand does matter. I take Pure Encapsulations 600 mg, 2ce a day. When I took a cancer med that brought on new neuropathy, I was up to 2400mg a day, the max recommended. Thorne is another good brand. I've had no side effects but good ones. It stops skin aging. In fact, they're now selling an ALA cream.

ALA is a very powerful antioxidant, one of the few that is both water and oil soluble. My hospital is now testing it for relief of pain from diebetic neuropathy and Lyme disease. Hope this helps.

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johnmacc | @johnmacc | Oct 26, 2022
In reply to @tessie63 "I used ALA for two months and did not find any difference with my neuropathy. Some..." + (show)
Profile picture for tessie63 @tessie63

I used ALA for two months and did not find any difference with my neuropathy. Some would say it takes longer but after this time I should have felt a hint of change in my condition and I did not.

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How much did you use daily? Was it R ala? Johnmacc

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tessie63 | @tessie63 | Oct 26, 2022

Sorry, it’s been a while since I tried it so I am not sure which one or how much I used. I followed the dose on the pkg. Wish I could be of more help.

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pamelaz | @pamelaz | Oct 26, 2022
In reply to @njed "tessie63 - One thing for sure we can all learn through this journey and that is..." + (show)
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tessie63 - One thing for sure we can all learn through this journey and that is this - what might help for some may not help for others. I think it is a matter of trying different things and hopefully, something will help.

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I have constant pain. Do you know of anything that will help?

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John, Volunteer Mentor | @johnbishop | Oct 26, 2022
In reply to @pamelaz "I have constant pain. Do you know of anything that will help?" + (show)
Profile picture for pamelaz @pamelaz

I have constant pain. Do you know of anything that will help?

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Hi @pamelaz, So sorry to hear you haven't found anything the helps with your neuropathy pain. I know it has to be terrible.

The Foundation for Peripheral Neuropathy has a list that some people have found helps their symptoms here: https://www.foundationforpn.org/wp-content/uploads/2020/08/Complementary-and-Alternative-Treatments-Revised-2020-final.-1.pdf

Have you tried any complementary or alternative treatments?

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