Looking to connect with people who have non-diabetic neuropathy

@fisbo @redhatter here
I have what my Drs call Idiopathic small nerve neuropathy and idiopathic peripheral neuropathy. They think it was caused by a virus which I had at the time. I went to work at the casino with chills, and hot flashes almost at the same time along with every bone in my body hurting. It hurt to walk but I forced myself. I told my Supervisor that I wasn’t feeling good and asked if there was an early out could I take it and go home? I lasted about 2 hrs. Slowly walking around checking on machines and customers. I had 4 steps to climb to get to from the pit to the main level. I couldn’t make it up them with out my lower legs giving out on me and I stumbled and fell face first into the steps. Needless to say I was sent home via an ambulance ride to the local hospital ER where they checked me out and couldn’t find anything obviously wrong with me - drug related in my blood system or showing effects of drugs. They called my husband-then boyfriend to come and get me at 3:30am. From there and for the next 6 months I underwent test after test until all the could find was the Neuropathy and because they couldn’t find what caused it, they called it Idiopathic small nerve peripheral neuropathy

@fisbo @redhatter here
I have what my Drs call Idiopathic small nerve neuropathy and idiopathic peripheral neuropathy. They think it was caused by a virus which I had at the time. I went to work at the casino with chills, and hot flashes almost at the same time along with every bone in my body hurting. It hurt to walk but I forced myself. I told my Supervisor that I wasn’t feeling good and asked if there was an early out could I take it and go home? I lasted about 2 hrs. Slowly walking around checking on machines and customers. I had 4 steps to climb to get to from the pit to the main level. I couldn’t make it up them with out my lower legs giving out on me and I stumbled and fell face first into the steps. Needless to say I was sent home via an ambulance ride to the local hospital ER where they checked me out and couldn’t find anything obviously wrong with me - drug related in my blood system or showing effects of drugs. They called my husband-then boyfriend to come and get me at 3:30am. From there and for the next 6 months I underwent test after test until all the could find was the Neuropathy and because they couldn’t find what caused it, they called it Idiopathic small nerve peripheral neuropathy

Hi, I have idiopathic peripheral neuropathy which has gradually worsened over the last 10 years, but dramatically worsened after 2nd moderna vaccine. Getting IVIG and taking Lyrica. Now I’m suffering with advanced arthritis in right hip and considering hip replacement surgery. Has anyone had hip replacement? I’m terrified of being worse off since I already have such poor mobility.

I have seen two neurologists. The first didn't seem to know or care. My primary doctor recommended a different neurologist. He was very helpful. I had never heard the term "small fiber" before and neither doctor asked about my background but I don't have a history or anything that might have caused it.
My doctor recommended nortriptyline (2 / 25mg capsules) in the evening. Now I sleep very soundly and most of the time it seems like I don't have neuropathy. Hoping it doesn't get worse.

@user_ch98d0b5c - Well, I fit that condition...idiopathic peripheral neuropathy. Unlike John, mine comes with a ton of pain. The possible cause may be previous injuries like falling off horses and down mountains. I am happy to offer what does and does not work for me to provide some relief. Just let me know and I can send you a private message or post for all.

Please post any pills that help! My doc says:”so you’ve got arthritis all over! Take pain pills! 😳

Hola e leído tu comentario y quisiera preguntar el efecto de la medicación nueva que estás tomando, nortriptilina, además de permitirte dormir profundamente te quita el dolor en algún momento?.Pregunto esto porque decís qué a veces te parece no tener neuropatía.
Tengo neuropatía de origen desconocido, qué me impide caminar correctamente, no tengo equilibrio, tengo espasticidad, poco o nada siento mis piernas pero si dolor ante ciertos estímulos, sobretodo los punzantes. Solo en esas ocasiones tengo dolor.

Yes I have it very bad in my feet and legs. Feel weakness in legs and the pain is unbearable. The tablets don't work and my life has just changed dramatically. I hope you are not as bad as me.

Yes I have it very bad in my feet and legs. Feel weakness in legs and the pain is unbearable. The tablets don't work and my life has just changed dramatically. I hope you are not as bad as me.

Hi,
I comment over and over with the same thing. Sorry, do not want to bore anyone, just the newbies need to hear ...CBD works for me and THC cream at night. Cannot take THC orally...haha getting "high" days are over for this chic! I tried with and without and the stuff is pricey, but it WORKS (ON FOOT RUBS)! Good luck, sorry for you and me!!