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Pediatric diffuse high-grade glioma in adults?

Posted by Corey Thomas @coreythomas, May 6 6:23pm

So my Glioma had samples taken after surgery. Most all types weren't found until one place came back with Pediatric diffuse high grade glioma (grade 4). This is normally found in children from 1-5 years old. I'm 45.

Anyone here with something similar?

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sjt10323 | @sjt10323 | May 12 1:52pm

I did at age 61. Due to negative attitudes from staff, I did get a 2nd opinion after my first treatment. They too were concerned with the results. There was a slight change in the results when they tested them again. Perhaps you should get one too if you haven't already.

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1 reply
Corey Thomas | @coreythomas | May 13 3:55pm
In reply to @sjt10323 "I did at age 61. Due to negative attitudes from staff, I did get a 2nd..." + (show)
@sjt10323

I did at age 61. Due to negative attitudes from staff, I did get a 2nd opinion after my first treatment. They too were concerned with the results. There was a slight change in the results when they tested them again. Perhaps you should get one too if you haven't already.

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They are sending the samples taken to Mayo for review. Hopefully everything looks OK. Not sure where we are on that.

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Moderator
Colleen Young, Connect Director | @colleenyoung | 2 days ago
In reply to @coreythomas "They are sending the samples taken to Mayo for review. Hopefully everything looks OK. Not sure..." + (show)
@coreythomas

They are sending the samples taken to Mayo for review. Hopefully everything looks OK. Not sure where we are on that.

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Any update, @coreythomas?

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Corey Thomas | @coreythomas | 1 day ago

Haven't heard back from them. Mostly worried about my insurance not covering... $9k is s LOT.

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