Chronic small bowel obstruction from adhesions

Thank you for your response, I agree I thank God every day for my time here on earth. I remind myself over and over I have two beautiful daughters and five beautiful grandkids ( including two sets of twins) that I adore. I had never heard of adhesions until I started having problems myself. I didn’t have a choice when I had my initial surgery I had a 15lb benign tumor in my uterus, that’s what started it all.
One more question do your adhesions cause pain on a daily basis? Mine do but I’ve learned to deal with them.

I'm sorry to hear about the problems you are having with adhesions. I am in a similar situation with my abdominal adhesions. May I ask how you deal with the daily pain? I haven't found a good solution for that yet.
I would appreciate any advice you can give me as my doctors are of very little help.

I appreciate you posting again, @tennisfan. If you read through some of the posts in this discussion group, you will see that many have used abdominal massages to help. There is a post by @thull which describes some of the massage techniques that she has used. Here is a link to her post, https://connect.mayoclinic.org/comment/334661/. @thull has had several surgeries of the sigmoid colon and she knows a lot about adhesions. I hope that she will join you in discussing her experiences with you.

If you have any concerns, you might talk with your doctor first. Have you tried abdominal massage?

Hello, I have never had much success with Doctors helping with my adhesions. I’ve been told adhesions don’t usually hurt, so they don’t believe me.
I do a few things that help me, no the pain doesn’t go away but mentally I deal with the pain better. I have acupuncture done several times a month, I practice breathing exercises( I know when I’m really hurting I hold my breath), I do yoga, I use the CALM app. etc.
to be honest you are the first person that I’ve found who also has adhesion in their belly. Sadly it’s nice that someone understands what I go through on a daily basis.

I had pelvic surgery roughly 10yrs ago, in August 2019 I had my first bowel obstruction caused from adhesions. I’m May of 2020 I had my second bowel obstruction due to adhesions, this surgery was much worse. My surgeon tried laparoscopy but had to stop and do a mid line incision because of how dense the adhesions were. She accidentally nicked my intestines which caused a infection, long story short I spent two months in the hospital. Fast forward to January 2021 I had appendicitis and once again another surgeon knowing I had adhesions tried avoiding the area we thought was the worst. But he made several small incisions and nicked my intestines. I ended up with abcsesses and spent almost a month in the hospital very sick.
My question is are their other people going through similar problems? Did anyone ever warn you about the possibility of adhesions when you had your first surgery? Does anyone know about anything that will help stop the recurring bowel obstructions caused by adhesions?

I had pelvic surgery roughly 10yrs ago, in August 2019 I had my first bowel obstruction caused from adhesions. I’m May of 2020 I had my second bowel obstruction due to adhesions, this surgery was much worse. My surgeon tried laparoscopy but had to stop and do a mid line incision because of how dense the adhesions were. She accidentally nicked my intestines which caused a infection, long story short I spent two months in the hospital. Fast forward to January 2021 I had appendicitis and once again another surgeon knowing I had adhesions tried avoiding the area we thought was the worst. But he made several small incisions and nicked my intestines. I ended up with abcsesses and spent almost a month in the hospital very sick.
My question is are their other people going through similar problems? Did anyone ever warn you about the possibility of adhesions when you had your first surgery? Does anyone know about anything that will help stop the recurring bowel obstructions caused by adhesions?

Unfortunately, if they try surgery to remove your adhesions, it will just create more. After weight loss surgery, gallbladder removal and internal hernia surgery, I had so many adhesions that a reconstructive surgery was done. It took 7 hours and 4 pints of blood. I haven’t had a bowel obstruction since then.

I am catching up with these posts; I think there have been multiple threads discussing SBOs, and what to do about them. I have gone to a pelvic floor specialist, who has suggested other PTs, since she did not feel that she could be helpful. I will look into her recommendations... Through a chain of recommendations, it has been suggested that I consider consulting a surgeon for lysis of adhesions, which, as you can imagine, scares me. Meanwhile, I watch what I eat all the time... I have occasional "pre obstruction warning pains" when I know I may be headed for trouble and immediately stop eating solids. This is not fun, but I am not sure what else to do. ... I wish all my fellow sufferers good luck and I will let you know if I find abdominal massage successful... if I can find the right person to do it.

I had abdominal lysis seven weeks ago and as far as I can tell I have gotten worse. There are fewer things that I can eat and I have more pain. The surgeon did tell me to wait six months before deciding if we were successful or not so I guess I would just be cautious about have lysis of your adhesions. I wish you all the best of luck in this weird journey.