Share this:
ginpene
@ginpene05

Posts: 75
Joined: Apr 06, 2017

Chronic small bowel obstruction from adhesions

Posted by @ginpene05, Apr 6, 2017

This is my 5th SBO with hospitalizan in 18 months, due to adhesions. No surgery yet, but am considering Small Passage treatment. Last 3 times happened in the last 4 months. This is getting old. Any idess?

REPLY

In January I had my first bout with SBO.It was extremely painful and after a week in the hospital I had exploratory laparoscopic surgery.My adhesions were lysed and I went home 48 hours later.The surgery was practically painless and very easy to recover from.I wish I had done the surgery sooner as the symptoms were so much worse .I can not imagine going through the obstruction so many times.

Hello @ginpene05, and welcome to Connect,

You’ve been through quite a bit, and of course you must be frustrated with finding no relief!

I’d like you to meet @rssanders @jgirlatlaw @justjane @eddiesrp @jimmymac @ron22 @bonitav @wordnoid @londonmark @idnas @kag13 @loriel59, who have shared their experience with small bowel obstruction (SBO) in the following discussions, and I’m confident that they will return to share some insight with you:

Bowel obstructions caused by adhesions following abdominal surgery: http://mayocl.in/2nhtuhj
bowel obstruction: http://mayocl.in/2nPqSUg
Scar tissue surrounding organs: http://mayocl.in/2o7g2LT

Here is some information from Mayo Clinic as well: http://mayocl.in/2oJyHhJ

@ginpene05, could you tell us a bit more about the cause of these adhesions? are they scar tissue? What do you currently do to help control your symptoms?

@kanaazpereira

Hello @ginpene05, and welcome to Connect,

You’ve been through quite a bit, and of course you must be frustrated with finding no relief!

I’d like you to meet @rssanders @jgirlatlaw @justjane @eddiesrp @jimmymac @ron22 @bonitav @wordnoid @londonmark @idnas @kag13 @loriel59, who have shared their experience with small bowel obstruction (SBO) in the following discussions, and I’m confident that they will return to share some insight with you:

Bowel obstructions caused by adhesions following abdominal surgery: http://mayocl.in/2nhtuhj
bowel obstruction: http://mayocl.in/2nPqSUg
Scar tissue surrounding organs: http://mayocl.in/2o7g2LT

Here is some information from Mayo Clinic as well: http://mayocl.in/2oJyHhJ

@ginpene05, could you tell us a bit more about the cause of these adhesions? are they scar tissue? What do you currently do to help control your symptoms?

Jump to this post

Yes, they are scar tissue from previous surgery.They were seen and removed during the laparoscopic surgery.

@kanaazpereira

Hello @ginpene05, and welcome to Connect,

You’ve been through quite a bit, and of course you must be frustrated with finding no relief!

I’d like you to meet @rssanders @jgirlatlaw @justjane @eddiesrp @jimmymac @ron22 @bonitav @wordnoid @londonmark @idnas @kag13 @loriel59, who have shared their experience with small bowel obstruction (SBO) in the following discussions, and I’m confident that they will return to share some insight with you:

Bowel obstructions caused by adhesions following abdominal surgery: http://mayocl.in/2nhtuhj
bowel obstruction: http://mayocl.in/2nPqSUg
Scar tissue surrounding organs: http://mayocl.in/2o7g2LT

Here is some information from Mayo Clinic as well: http://mayocl.in/2oJyHhJ

@ginpene05, could you tell us a bit more about the cause of these adhesions? are they scar tissue? What do you currently do to help control your symptoms?

Jump to this post

How long ago was your lap done? Any SOBs since then? ginpene

@kanaazpereira

Hello @ginpene05, and welcome to Connect,

You’ve been through quite a bit, and of course you must be frustrated with finding no relief!

I’d like you to meet @rssanders @jgirlatlaw @justjane @eddiesrp @jimmymac @ron22 @bonitav @wordnoid @londonmark @idnas @kag13 @loriel59, who have shared their experience with small bowel obstruction (SBO) in the following discussions, and I’m confident that they will return to share some insight with you:

Bowel obstructions caused by adhesions following abdominal surgery: http://mayocl.in/2nhtuhj
bowel obstruction: http://mayocl.in/2nPqSUg
Scar tissue surrounding organs: http://mayocl.in/2o7g2LT

Here is some information from Mayo Clinic as well: http://mayocl.in/2oJyHhJ

@ginpene05, could you tell us a bit more about the cause of these adhesions? are they scar tissue? What do you currently do to help control your symptoms?

Jump to this post

Hi. My appendix burst when I was 6yr old, and the surgical team left gauze in me, so a 2nd surgery was required. I had tuboovarianplasty at age 30. A laparoscopy at age 50 found tons of adhesions. My 1st SBO was 1 and a half yr ago at age 63, and I am in for my 5th right now!The good surgeons here correctly refuse to operate until I am really bad. So, feeling pretty deesperate, I plan to seek holistic PT treatment at Clear Passage. Anybody else know of them?

@kanaazpereira

Hello @ginpene05, and welcome to Connect,

You’ve been through quite a bit, and of course you must be frustrated with finding no relief!

I’d like you to meet @rssanders @jgirlatlaw @justjane @eddiesrp @jimmymac @ron22 @bonitav @wordnoid @londonmark @idnas @kag13 @loriel59, who have shared their experience with small bowel obstruction (SBO) in the following discussions, and I’m confident that they will return to share some insight with you:

Bowel obstructions caused by adhesions following abdominal surgery: http://mayocl.in/2nhtuhj
bowel obstruction: http://mayocl.in/2nPqSUg
Scar tissue surrounding organs: http://mayocl.in/2o7g2LT

Here is some information from Mayo Clinic as well: http://mayocl.in/2oJyHhJ

@ginpene05, could you tell us a bit more about the cause of these adhesions? are they scar tissue? What do you currently do to help control your symptoms?

Jump to this post

Everybody, who uses low residue diet and who doesn't? Anybody think excercise helps? I have obstructed while on strict low residue as well as on regular diet. The GI surgeons here say fiber intake is irrelevant. I'm not sure I agree, and everyone else says to err on the side of caution. After my 4th one I started adding a few well cooked veggies to my diet and found myself back in hospital 4 weeks later. Thanks to everyone. 

I have been having bowel obstructions for almost 4 years. No one could tell me what was going on. I was getting them almost monthly. Worst pain I’ve ever gone through. At one point I lost 17 lbs. In October 2015 I finally ended up in the emergency room. This is when they finally found the small intestinal obstruction. The thought is that they are caused by abdominal radiation I got back in 2003-2004 for Non-Hodgkins Lymphoma.
I sometimes go 3-4 months without an attack, but that is rare. They are part of my life.
The surgeon told me that if I end up back in the hospital, it’s NG tube again. If NG doesn’t work its emergency surgery.
The problem with surgery is that there is a 60% chance of it creating more adhesions, hence I’d be worse off.
I try to each low fiber even though I am a vegetarian. I cook my veggies. I don’t eat any raw. No corn. I peel fruit like apples. Honestly, I feel I never know what helps and what doesn’t. It’s beyond frustrating and not an easy way to live. I’ve gotten attacks on vacation (totally bedridden in Paris!). I am in horrible pain for 24-48 hours. Then I’m sick for 4-5 more days. I feel for everyone battling this.

Liked by nancybev

Sure sounds familiar! My first one was during vacation in Florida. Just came home today from 5 days back in hospital. I had surgery 35 yrs. ago to lyse adhesions. My battle plan now is go back to very low residue, even though the surgeon is not a low fiber enthusiast. Sorry you are also miserable. I tell myself it could be worse – heart, respiratory, paralysis. Sudden death! Hang in there. Ginny

Liked by nancybev

@ginpene05

Sure sounds familiar! My first one was during vacation in Florida. Just came home today from 5 days back in hospital. I had surgery 35 yrs. ago to lyse adhesions. My battle plan now is go back to very low residue, even though the surgeon is not a low fiber enthusiast. Sorry you are also miserable. I tell myself it could be worse – heart, respiratory, paralysis. Sudden death! Hang in there. Ginny

Jump to this post

Ginny,
Isn’t it insane what we have to compare it to in order to feel better! LOL
I’ve had at least 35 attacks. I try to forget about them during the normal times. I think low fiber helps a bit.
It’s worth a try. Remember, whenever you feel one coming on, don’t eat. Drink as you can. Once it ends eat broth, juice water etc for 24 hours. Then slowly go back. Good luck! Lori

@ginpene05

Sure sounds familiar! My first one was during vacation in Florida. Just came home today from 5 days back in hospital. I had surgery 35 yrs. ago to lyse adhesions. My battle plan now is go back to very low residue, even though the surgeon is not a low fiber enthusiast. Sorry you are also miserable. I tell myself it could be worse – heart, respiratory, paralysis. Sudden death! Hang in there. Ginny

Jump to this post

Mine never respond to clear fluids, always go on to vomiting, so I have to go to ER where they stabilize the pain and vomiting, then admit me for around 5 days. Usually after 3 or 4 days I progress to water then clear fluids, and they discharge me home on a soft diet. I think what I hate most is the trip to the ER, constantly having to stop and get out of the car to vomit on people’s front lawns. And figuring that some day it won’t respond to the “bowel rest” as they call it, and I’ll need surgery. Ah well, as my Mom always said, “Onward and upward, Dear.” Hang in there. Ginny

@nonnie1

In January I had my first bout with SBO.It was extremely painful and after a week in the hospital I had exploratory laparoscopic surgery.My adhesions were lysed and I went home 48 hours later.The surgery was practically painless and very easy to recover from.I wish I had done the surgery sooner as the symptoms were so much worse .I can not imagine going through the obstruction so many times.

Jump to this post

Welcome to Connect, @nonnie1,

Thank you so much for responding to ginpene05; it’s good to know that the surgery helped. Do you have any thoughts about diet and/or exercise? Did your doctor say anything about recurring scar adhesions?

Hi @mayoclinicseeker,

I’d like to introduce you to a few members in the Digestive Health group on Connect; please meet @nonnie1 @ginpene05 @rssanders @jgirlatlaw @justjane @eddiesrp @jimmymac @ron22 @bonitav @wordnoid @londonmark @idnas @kag13 @loriel59, all of whom have shared their experience with intestinal stenosis/obstruction, and I’m confident that they will return to share their insights with you:

You may also wish to view these discussions:
Bowel obstructions caused by adhesions following abdominal surgery: http://mayocl.in/2nhtuhj
bowel obstruction: http://mayocl.in/2nPqSUg

And, here is some information from Mayo Clinic: http://mayocl.in/2oJyHhJ

@mayoclinicseeker, what symptoms are you experiencing? What do you currently do to help control your symptoms?

@kanaazpereira

Hi @mayoclinicseeker,

I’d like to introduce you to a few members in the Digestive Health group on Connect; please meet @nonnie1 @ginpene05 @rssanders @jgirlatlaw @justjane @eddiesrp @jimmymac @ron22 @bonitav @wordnoid @londonmark @idnas @kag13 @loriel59, all of whom have shared their experience with intestinal stenosis/obstruction, and I’m confident that they will return to share their insights with you:

You may also wish to view these discussions:
Bowel obstructions caused by adhesions following abdominal surgery: http://mayocl.in/2nhtuhj
bowel obstruction: http://mayocl.in/2nPqSUg

And, here is some information from Mayo Clinic: http://mayocl.in/2oJyHhJ

@mayoclinicseeker, what symptoms are you experiencing? What do you currently do to help control your symptoms?

Jump to this post

I have an update. Since my last obstruction I have been diagnosed with Small Bowel Cancer. Finally a reason for my problems. Oddest of all is that an exploratory surgery 3 weeks ago found no adhesions! Today I will have a resection of the malignant part of the jejunun portion of the small intestine. Life really keeps me on my toes!

@kanaazpereira

Hi @mayoclinicseeker,

I’d like to introduce you to a few members in the Digestive Health group on Connect; please meet @nonnie1 @ginpene05 @rssanders @jgirlatlaw @justjane @eddiesrp @jimmymac @ron22 @bonitav @wordnoid @londonmark @idnas @kag13 @loriel59, all of whom have shared their experience with intestinal stenosis/obstruction, and I’m confident that they will return to share their insights with you:

You may also wish to view these discussions:
Bowel obstructions caused by adhesions following abdominal surgery: http://mayocl.in/2nhtuhj
bowel obstruction: http://mayocl.in/2nPqSUg

And, here is some information from Mayo Clinic: http://mayocl.in/2oJyHhJ

@mayoclinicseeker, what symptoms are you experiencing? What do you currently do to help control your symptoms?

Jump to this post

So sorry to hear you have Cancer. Hope your treatment goes well and you feel better soon. Take care Lynn

@kanaazpereira

Hi @mayoclinicseeker,

I’d like to introduce you to a few members in the Digestive Health group on Connect; please meet @nonnie1 @ginpene05 @rssanders @jgirlatlaw @justjane @eddiesrp @jimmymac @ron22 @bonitav @wordnoid @londonmark @idnas @kag13 @loriel59, all of whom have shared their experience with intestinal stenosis/obstruction, and I’m confident that they will return to share their insights with you:

You may also wish to view these discussions:
Bowel obstructions caused by adhesions following abdominal surgery: http://mayocl.in/2nhtuhj
bowel obstruction: http://mayocl.in/2nPqSUg

And, here is some information from Mayo Clinic: http://mayocl.in/2oJyHhJ

@mayoclinicseeker, what symptoms are you experiencing? What do you currently do to help control your symptoms?

Jump to this post

@ginpene05 I’m so sorry to hear of your cancer diagnosis, but I sense you are relieved to find an answer to your problems. Will you let us know how you are doing after you’ve recovered from your surgery? Teresa

Please login or register to post a reply.